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I have had hemifacial for about 6 yrs. Starting in the eyelid and progressively getting worse to the point I finally went to the doctor (neurologist) 3 yrs ago.
I had been taking 900 mg of tegretol until a few weeks ago. The med was doing no good anymore. My doctor has increased to 1000. Its still not working. I am ready to give up on the meds and try botox but my doctor wants to try once more with adding ANOTHER med into the mix (neurontin).
I know that the botox is expensive and i will have to go back every 3-6 months but I am so over taking the med, which makes me sleepy and not getting results anymore. I hate going out being self conscience of the "twitching". I can hardly smile anymore without the right eye drooping. It's so frustrating and depressing.
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