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I love my raw,red,swollen,lashless eyelids! said no one!

Posted , 5 users are following.

susanhelp38
susanhelp38

ok,i see so much stories without happy endings that i am ,and im usually positive,feeling that this may be the new awful reality!!!  Burning,itchy,and i woke up today to very short lashes not all gone but length has gone. Please share some positive stories of where you are the hero wearing eyemakeup and not giving your eyes a second thought!!!!!!   share stories of how you overcame and kicked blepharitis in the a$$,lol

0 likes, 16 replies

16 Replies

  • faye______00403
    faye______00403 susanhelp38

    Posted

    I would love to be the one to do that......until the eye doctors and

    drug companies realize we are a world of untapped profits I'm

    afraid there is not much research on Bleph.....too bad for us.

    • susanhelp38
      susanhelp38 faye______00403

      Posted

      lol,faye,not promising.....   wink come on,there has to be some stories of how it became livable or went into remission or something,just anything,lol not you faye.... you are ready commented,negative nelly smile lol
    • faye______00403
      faye______00403 susanhelp38

      Posted

      Well. lets see.....would you like me to lie?

      However there has been some occasions when it was better

      than other times.  I do believe I had a week in 2003 that was

      good......no seriously, it does ebb and flow.  Some days

      are better than others.....keep your sense of humour

      and maybe that will make you feel more upbeat....

    • susanhelp38
      susanhelp38 faye______00403

      Posted

      awww,thanks faye,who knows,in every hardship is where we grow in humility,understanding and strength... Although it sucks and im suffering now,and we are all suffering in our own bleph hell, i have to truly believe that a lesson will come out of it for our goodness....now what that lesson maybe,i dont know,but it better be some good stuff for all this im putting up with! lol smile ps. yes ,yes ,faye,lil white upbeat encouraging ones never hurt! lie lie smile joking
    • faye______00403
      faye______00403 susanhelp38

      Posted

      If there is a lesson to be learned from 25 years of Bleph I'm

      still waiting to learn it....I think probably the only good thing

      about Bleph is that it is not terminal.....I've got issues that

      I have to deal with and feel blessed that they're nothing that will

      kill me just annoy the hell out of me......and actually Bleph

      is second  on that list.....

      Do the warm soaks and gently clean lids with lid cleaner

      such as Occusoft and it will get better.  Maybe take a

      couple of Aleve or something over the counter if you can

      and it will help with the pain.....

  • lyse55468
    lyse55468 susanhelp38

    Posted

    The day I accepted that I had to go out "au naturel" and simply get rid of all eye makeup and mascara..... life changed a bit. It got easier to keep blepharitis under control and I realized that I could look really good without anything artificial.

    The second thing was to find what works best for me and stick with it. I'm definitely not cured, but for the last couple of years I don't have to think about it too much.

    I use wipes 3 times daily and artificial tears and that's it. If I were to insist on eye makeup, I would be back at square one and suffering greatly .... it's just not worth it.

    If you stay positive.... It helps smile

    • faye______00403
      faye______00403 lyse55468

      Posted

      I think a lot of women's problem is that they don't want to give

      up the eye-make-up.   It's pretty awful to look at yourself in

      the mirror and see a blank face with swollen, red, crusty

      watery eyes.   I feel for those that work, they have to go out

      and face the world.  However if you want the Bleph to get

      better and be bearable you have to get make-up off your

      eyes.   I was working when diagnosed about 25 years ago

      but had no problem giving up the make-up to get relief

      from the Bleph.   I'm still doing warm soaks and use

      Occusoft wipes to clean the crust off.  Problem is that it

      comes right back.  It's a daily fight.......

    • becky_60526
      becky_60526 lyse55468

      Posted

      I may have to go makeup-less too.  I have decided to wear it on special occasions.  I don't mind no eye make up, except with few lashes and red rimmed lids, I look pretty bad.  Many women my age wear no eye make up and look pretty good, but their eyes don't have thickened edges and aren't red.  MAYBE, without using eye make up for awhile that will improve.  I've done the soaks religiously for over two years and eyelid scrubs for 3 years, they look just like they did when all of this first started.  I am still doing the scrub every night and using polymycin ointment and Azasite drops one week on, then a week off.  I also use Genteal Extreme Dry Eye gel drops if I awake during the night or when I am off of the other two antibiotics.  All of of this has helped.   I am now, thanks to this website using the Wet Ones and think I do get relief.  No eye make up is my last resort.

       

  • lyse55468
    lyse55468 susanhelp38

    Posted

    You are absolutely right.... the younger you are, the harder it is to accept it. I still wish I could wear mascara, but I choose not to linger on the thought.

    Happy Easter everyone smile

    • faye______00403
      faye______00403 lyse55468

      Posted

      When it gets better......you can buy some throw away

      mascara wands on Amazon.....I think that some ladies

      used them thinking that you keep infecting yourself if

      you use the same make-up.  You use one of these and

      then toss it.   Something to look forward to....

  • lyse55468
    lyse55468 susanhelp38

    Posted

    I've been thinking about these wands. It's probably time for me to order them smile
  • kaz21
    kaz21 susanhelp38

    Posted

    I really miss wearing mascara but would only consider wearing on very special occasions, however i did wonder if anyone has had there eyelashes tinted / dyed and if so did this aggrevate there blepharitis.
    • susanhelp38
      susanhelp38 kaz21

      Posted

      never tried the tint,but wear dark lipstick and blush, i heard of it in the industry,try it!
  • susanhelp38
    susanhelp38

    Posted

    To my ladies who wore makeup like a kardashian,thats right,i was one of those that wore shadow with glitter,liquid liner on top pencil on bottom,and pounds of mascara................ day in and day out!!!! I have come to the conclusion,i am going to buy all kinds of lipsticks and large sexy earrings as well as trying to do my best with this condition. I find it ironic that im a hairdresser and makeup artist and now instead of smokey eye on myself its for all my clients..... dont loose your sexy,thats right ,no matter the age,no matter the illness,BRING BACK YOUR SEXY ,NO EYE MAKEUP AND ALL!!!!!!!!!!!!   smile ps. tried the throw away mascara wands ,didnt work,tried it all........
  • lyse55468
    lyse55468 susanhelp38

    Posted

    Why didn't the wands work? Is it because they are no good or because it caused your blepharitis to flare up?
    • susanhelp38
      susanhelp38 lyse55468

      Posted

      it wasnt the apps that cauased flare up,it was the makeup itself. i used all different throw away apps.
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