I'm 17 and been diagnosed with hypothyroidism

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Hi, a few weeks ago I was diagnosed with hypothyroidism, I've had 2 weeks of levothyroxine but I'm feeling worse. Doctors said there's nothing they can do, even when I explained that I'm so severely exhausted I'm struggling to get to college and my part time job. Does anyone else feel so exhausted and shake a lot? I also don't have any weight gain, some weight loss instead, therefore my mum thinks I may possibly have chronic fatigue syndrome instead. It would be really helpful to hear some people are feeling the same as am also suffering from anxiety now as feel so isolated. Thanks

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  • Posted

    Emily, it can take a while.  Don't get despondent and get you blood test s done in a month or two
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  • Posted

    Hi Emily, You are not alone ! I am also having lots of problems using Levothyroxine and have been so tired I can hardly function !!! It has been so bad this past week that I am giving myself a break from these tablets. I do have to admit when I first started on them I was very ill for the first two weeks, but it did improve, but the tiredness just did not go away. Then I had to have the medication increased recently and the tiredness just got crazy and out of hand. No use to me as I am my husband's carer !!! I do intend to go back to my own GP next week and I will not be taking "There is nothing I can do" as an answer. Bare with it for another few weeks. If things don't improve go back to your doctor, if he/she is unwilling or unable to help ask to be referred to the hospital. One pill does not suit all. Hope things do improve for you, take care xx

      

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  • Posted

    Hi Emily, post the results that let your doc to diagnose hypothyroidism and what dose of Levo did s/he prescribe?

    Read up as much as you can on this subject and read as many of these posts as you can.  You may also want to look into adrenal fatique. Weight loss and shaking sound more like hyperthyroidism than hypo - but lets see the numbers.

    Oh, and don't feel isolated there are thousands of us all over the world who are battling this problem - and the bigger one, our doctor's understanding of it.

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  • Posted

    Hi Emily I was diagnosed at your age and suffered for years with chronic fatigue (to be diagnosed with chronic fatigue syndrome at 21 years old). I think this was a misdiagnosis and it was the thyroid not properly treated this whole time. I was, like you, on levothyroxine (for many years) and only recently have I started to try a combination of this drug with liothyronine (a T3 drug that is expensive on the NHS and only generally given as a last resort). You could try this if you are still feeling exhausted. However, as the previous posts state- it may just take a little longer to adjust (thyroid meds usually do). Or you may need a slight increase in levothyroxine. . Give it time and don't give up- there are other options to try. Might be worth asking to be referred to an endocrinologist if problems persist- I am told these people would be the experts in thyroid issues. Good luck
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