I'm 19, diagnosed, and don't know what do to?
Posted , 5 users are following.
Fell ill 10/14 and had Fibromyalgia written in my medical records as diagnosed by the first doctor I saw around 11/14. Seen various doctors since who suggest fibromyalgia but will not give me an official diagnosis and refuse to refer me to a rheumatologist. I am taking it that I do have fibromyalgia, but I am struggling to cope. I'm 19, out of work, and just managed to get onto ESA, but have no idea what on earth to do. In all honesty, I feel rubbish each day, just some days are worse than others. I am on amitriptyline 25mg which are helping a little but their effectiveness is wearing off now. I don't know if I should be considering work, or not considering work? I get rejected every time I apply regardless. I feel so worthless. Thankfully not suicidal - already been through that and don't want to go back there.
What at should I or could I do?
3 likes, 7 replies
caroline271 ParadiseSeeker
Posted
susan88130 ParadiseSeeker
Posted
Don't know what your symptoms are but the common symptoms of fibromyalgia are:-
Pain.
Anxiety.
Concentration and memory problems -- known as "fibro fog"
Depression.
Fatigue.
Headaches.
Irritable bowel syndrome.
Morning stiffness.
Then add in my case dry eyes, swollen glands the list goes on and on - but you need to see a rheumatologist - diagnosis is a matter of elimination which can take years and when every possibilty as been exhusted they then say Fibro/CFS.
Have you tried to contact a local Fibromyalgia Support Group?
take care - sue
ParadiseSeeker susan88130
Posted
I have asked for a referral about 3 times already but they won't. I have seen a neurologist who was very casual and told me it was arthritis but of course bloods would show that up and guess what? I've had all the tests imaginable and I'm clear on every one.
Ive thought about the local support group, but I'm struggling with people in general as it is, so considering going further out of my comfort zone is scary right now
susan88130 ParadiseSeeker
Posted
sue
christine26761 ParadiseSeeker
Posted
What is really really important is making sure you have good support and understanding.either by family or friends..I wouldn't be worrying about work right now...I'd get myself sorted first, having said that, you may need to work for survival..I don't know...but stress is such a shocker for Fibro as well as making sure you can get some quality sleep..be blessed ParadiseSeeker, keep blogging..it helps...stay positive no matter what ..it strengthens you..:-) xx
tiswas24537 ParadiseSeeker
Posted
get some magneisum flakes for your bath a good soak in this will help to easy pain by relaxing the muscles ,also helps with cramp or restless leg.you can also apply magneisum oil to your limbs for extra relif if needed but the oil stings a bit i am ok with it been using for yrs but some people find it to much, the flakes are fine .
get a good multi vit/ mineral brand not cheap stuff from supermarket .
and try having reflexolgy that was when i was at my best , i now have accupunture as my lady who did reflex has retired ,and theres no one eles who does it where i live, accupunture works well on symptoms .
reflex makes you feel better all over, you just have to remember to drink a couple of pints of water to flush the toxins and go home and have a sleep .then you should feel pretty ok till next treatment i always did.
if you can stay of meds i would lots of meds have simuliar side effects of the condition, i.e ,fatigue, dizzyness, stomach upset etc. there are at least 26 symptoms to fibro and it does get worse.if your at the begining start doing stuff now to prevent it ,the increase in symptoms
moderate excersise will help you from getting stiff you must do this ,i only mean a walk every day not a session at the gym.relaxtion get a self hypnosis cd loads on line ,one for stress and do it daily ,stress is the biggest cause of this illness
do your best to control it daily this will help imensly with pain and fatigue as it will reduce the chemicals being released into the blood stream . i hope this helps .this is a condition crush it as soon as posiable avoid stress that is the majour one start today and dont give up and you should have an ok life my accuputrist has fibro but shes is a very lucky girl she has a very lovely husband now and is very happy so her symptoms like fatigue and apain and digestion probelms are very miminmal
before she was in an unhappy marriage and her symptoms were much worse.
she went all over asia on her honeymoon ,for 3 weeks, massive flight times and changes ,would have floored me i would have been asleep for the full 3 weeks just recovering from flight ,she does roller disco traing for roller derby team i am so jealous , and on top of this she works two jobs , basicly the only differance is she happy and i am not , plus she has great family support , as well .
it does catch up with her sometimes but when it does she just rests and does some points . and shes fine in a few days . its so important not to be stressed as you can see from what iv just said .
mandy12133 ParadiseSeeker
Posted