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last week I had 2nd lot of Botox injections and both haven't worked. I have no feeling when my bladder is full or wetting until it's too late. I wear massive incontinence pads and I can still wet my clothes. This has been going on for a year. Since last Tuesday I use about 18 pads every 24 hours. Prior to Tuesday I had a long term indwelling catheter for 3 months which have caused urethral pain. I have been treated with uti's and since Botox I have sometimes have pain before I urinat. I am now having the indwelling catheter put back in in 1 week as I feel there is no option.
i am on the list for a sacral nerve stimulation device but this can take up to 4 years.
I feel so alone with all this and get really depressed and at times thoughts of suicide. Is there anyone that can give me advice or are going through similar stuff?
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