I m also suffering from the same problem since 4 years

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I m also tired with this Gilbert's syndrome.... I don't understand what to do ... In every 6 months my symptoms starts to appears thn hepatomegaly fever pain in right side everything...... In understand everything about problem.... But there should be the way na to manage pain and fever......

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  • Posted


    I suffer with Gilbert syndrome also I struggle to deal with any stuff I get ask to do by the doctor nothing seems to work no matter how many times you try to get help.

    Have you kept in contact with your doctor about all issues with Gilbert syndrome ? And what help have they given you?.

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    • Posted

      I understand your point about health issues.

      There is website out there that have tested and shown it can cause other issues but doctors only go with what there guideline tell them I have had doctors not know anything about Gilbert syndrome I have had to tell them what I can get etc.

      Yeah had all done but no issues.

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  • Posted

    Sorry , I don't want to contradict you but all doctors told me that Gilbert Syndrome has no symptoms and has no negative effects on the health unless your bilirubin is very high , mine is usually 1.7 and when I fast it can go to 2.3 , my doctor jokes that alcohol causes it but I drink little alcohol.

    In the past I had a lot of misterious health problems , I did all the tests , came out negative and doctors told me it was anxiety and stress , eventually all symptoms went away , could it be the same for you ?

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