I'm always feeling faint and weak, what should I do?

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I'm sorry if this isn't the correct place to post this. This is my last hope before my doctor's appointment in a month.

since I was in the fifth grade. (In 9th grade right now) and it is RUINING MY LIFE.

I have moments where my arms feel hollow, my head feels heavy, and my arms feel like they could roll back and collapse at any time. I get scared to the point of where I can feel every beat my heart does. I hate this SO MUCH.

Now, I can't stand up for long without feeling as if I'm going to experience one of those moments again. I feel weak and basically empty. Not depressed empty, because I am enthusiastic as possible, but a legit empty feeling, like I have no blood or organs in me.

Please please help me! I have a doctors appointment but it's next month on the 13th, which is really far. Please help, this is really scary!

I can't hang out with my friends anymore because I'm terrified of this and my parents don't believe me. Lord help me.

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  • Posted

    I had to type this many times to make it sound like an actual condition instead of insane rambling. The start was cut off but all it said was "I'm a 14-year-old female and-"

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    • Posted

      I agree very much with Ken.

      I'm not a medical person but to me your condition sounds most likely to neurological or endocrine - looking up something like PoTS or Dysautonomia might interest you but also thyroid disorders and Addison's. I too have learned the very long and hard way that my hunches about myself are correct. I grew up being told that my severe eczema and alopecia were psychosomatic. It turns out that I have had autoimmunity hall my life and my symptoms were almost certainly due to a mixture of Sjogrens Syndrome and Hypothyroidism. Recently I have been feeling a little as you describe and because of these diagnosis I'm now taken seriously by doctors.

      If you are able to I recommend that stay calm and smile so they don't assume you are being overly anxious. Look your GP directly in the eyes and explain that you aren't being neurotic - you know something is seriously wrong so you need their help immediately with investigations and referrals to the types of specialists that Ken has suggested.

      You know your body better than anyone because you live in it - so please stand firm if you can. Wishing you the very best of luck.

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  • Posted

    Brook, I am so sorry for what you are going through.Not having a diagnosis and not having people believe you are truly traumatic. Have you talked to your school nurse or councelor? They may be able to get you help quicker. You need to seee a Cardialogist, Neurologist and Psychiatrist. The Psychiatrist will help you sort all this stuff out and catagorize and prioritize your symptoms, triggers and medication reaction to your mental well being. I am not suggesting this is a mental condition but having an undiagnosed illness and especially when your family doesn't believe you will make you start doubting yourself. PLEASE, don't back down aqnd don't back off. Keep seeking answers and don't settle for the first diagnoses. You are young and have a full life ahead. I will be 70 yrs old in 2 weeks and I have been fighting this for 16 yrs. I did in fact contact a Psychiatrist thinking I might be a Hypochondriac. Most of my health problems stem from chemical contamination in the Vietnam war so I am always sprouting new symptoms.

    I send love and prayers to you and hope to hear a good report back, Ken

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  • Posted

    Hi Brooke67790,

    I'm very sorry for what you are going through. It's very hard to always feel ill, but it's even harder when doctors don't take you seriously and you have no answers and no support. I can't begin to offer any diagnosis and am not attempting to do so. You know your health better than anyone else. Just some ideas for you to read about are:  1) NES (non-epileptic seizures - they can feel 100% real "physically" and doctors know "very little" about this!), 2) possibly POTS (Postural Orthostatic Tachycardia Syndrome), or even, 3) Chronic Fatigue Syndrome. After seeing countless "specialists" in several states, and tens of thousands of dollars wasted from my pocket, I've learned that doing my own research (to educate myself) helps me be more prepared when I do meet with next specialists. Unfortunately, there are too many doctors who "select" the patients they want to see, who will yield the greatest ongoing opportunity for profit, with the least amount of demand on their time. People with such difficult cases (as the ones on this site) often don't fit that category. That's why we are bounced from one doctor to the next, in an endless cycle. Be your own advocate and go armed with your knowledge from your own research! Ask lots of questions and stay in the driver's seat! After all, it is "your" health! Best wishes!

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