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I’m at a battle with myself

Posted , 3 users are following.

sez95
sez95

Hi everyone,

I’m very new to this forum so hello!! 

I’m really just writing so I can understand how it FEELS to have ibd (chron’s). What it’s like when you wake up, after you eat, after you drink water, to exercise. How a typical day actually feels when you are living with this. 

I am at a battle with myself and have been for the past three years. I’ve always had ibs symptoms but it’s always been passed off as me being a “girl”. The last theee years it’s been considerably worse for me. I’m still liaising with a GP to find the root to my problems. There isn’t a day where I have formed stools. I’m constantly in pain when I wake up, I feel ill almost 90% of the time and I get affected by drinking water... although I have diarrhoea I have been clinically diagnosed with constipation. My stomach is hard but so tender.. I feel like I’m a walking corpse.. that’s the only way I can discribe it.. I look how I feel. 

Any help or insight on this topic would be greatly appreciated x

2 likes, 2 replies

2 Replies

  • chantal_65714
    chantal_65714 sez95

    Posted

    You need to ask for a stool calprotectin test, a referral, colonoscopy and pillcam. Ibs and crohns are very similar but the calprotectin test will tell the difference as you will not have elevated levels if it’s ibs . It’s usuallu 50-100 if it’s ibs and anything above this is inflammation caused by anything from ibd to bowl infections . 
  • Hollaka79
    Hollaka79 sez95

    Posted

    Second what’s already been said. Shoot for the calprotectein stool test first to get an initial idea, then colonoscopy & pill cam. And poss MRI & CT w/ contrast. Crohn’s is a slippery sucker to catch so keep pushing xx

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