I'm at a loss as to what I should do.
Posted , 14 users are following.
Was diagnosed with pmr a year ago by my family doctor, was put on 15mg prednisone and my entire life changed, the pain was gone and my quality of life restored. Was sent to a rheumatologist to confirm diagnosis and was
Told there was nothing wrong with me and to discontinue prednisone. My
gp agreed to keep me on it.Here's the problem, my gp now wants me to
taper down to 5mg. About the same time as the pmr diagnosis I also started having problems with my eyes, blurred and double vision, this condition
has gotten quite badand I'm really struggling with my vision. I have been
checked out by eye specialist and mri and told nothing is wrong. I'm at the end of my rope and just don't know what to do. The tapering of the prednisone is not going well as the pain is all coming back again, and I just can't
keep going through this. I feel like the doctors don't believe me and have no where to turn. I know that I can not go back to living a life of existence
only. Is there any one out there that can help me?
1 like, 50 replies
LayneTX deb88821
Posted
how long were you on Pred 15 mg?
i thought Pred can also effect our eyes if on too long at higher doses (don't know), but maybe go to real eye doctor verses just the perscription ones...I forget name and get it confused...
when end you say "pain", is it a 10 on pain scale like before Pred? Or about a 6-7? Uncomfortable but not make one fear for their lives type of pain?
I learned here some of us are stil feeling about 70% of pain and some have no pain and I know we all have different pain tolerance.
And my SED rate is back down to 6 verses 80 when I first was diagnosed.
deb88821 LayneTX
Posted
specialist just recently and they found no reason for the blurred and double vision. It has gotten bad enough that I can no longer drive. I'm so frustrated with the doctors, if you don't have
something
that jumps out at them they chalk it up as nothing. Before I started on prednisone my pain was a 8or 9 it hurt to move. My life was an existence only.
linda17563 deb88821
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pauline36422 deb88821
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deb88821 pauline36422
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margaret22251 deb88821
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constance.de pauline36422
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lodgerUK_NE margaret22251
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Anhaga lodgerUK_NE
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MrsO-UK_Surrey Anhaga
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Anhaga MrsO-UK_Surrey
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lodgerUK_NE Anhaga
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constance.de lodgerUK_NE
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margaret22251 Anhaga
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Take care. Mags
lodgerUK_NE constance.de
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margaret22251 lodgerUK_NE
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