I'm back
Posted , 14 users are following.
My PMR is back. It went in to remission May 2019 and it's back and it's not even been a year. And during the 2.5 years I was on prednisone I developed a bad case of osteoporosis and ended up with 10 broken bones in one years time. I've sent my rheumatologist an email but I was hoping for some advice. Like what anti-inflammatory diet do you recommend. And does methotrexate work to lower inflammatory? Is there anything else I can do that I have thought of?
BTW my last inflammatory blood test was just last month and they were
SED 42
CRP 2.6
At that time I wasn't symptomatic.
0 likes, 49 replies
BettyE amkoffee
Edited
It does seem that once PMR grabs us we are sitting on a time bomb. I've been "clear" now for more than six years but take nothing for granted.
Can only offer sympathy and best wishes. No experience of Methotrexate. Have been lucky bone wise but no idea why. My diet is ordinary but absolutely no highly processed food, fish a couple of times a week ditto meat, a lot of fruit and home grown veg. avoid white flour, can't seem to digest it. Only ever had one takeaway brought in by a guest.
EileenH amkoffee
Posted
Sorry to hear that - and what a shame to see you back, in the nicest possible way though.
Are you on medication for the osteoporosis?
Would Actemra be an option for you?
Vits K2 and K1 are different, K2 has very little do with blood clotting and it depends on what sort of anticoagulant you are on.
amkoffee EileenH
Posted
I had a Reclase infusion last August which is good for one year. (for my osteoporosis) I also take calcium with vit D and magnesium. I've asked my rheumatologist about taking K2 and she would prefer that I don't take it. It is a coagulant based on a Google search but I also know that when an animal such as a pet dog eats rodent poison the vet administers K2 to counteract the Coumadin that is in rat poison. I know this because I used to be a pest control technician.
EileenH amkoffee
Posted
No, vit K1 is the anticoagulant - vit K2 is a different substance, It's like the various B vitamins.
Michdonn amkoffee
Posted
Amkoffee, I read the supplements list the same as I been taking, but I also take MSM. Good luck on the rest of your PMR journey, try and stay active don't forget walking is good for your bones. 🙂
richard07199 Michdonn
Posted
what is MSM?
EileenH richard07199
Posted
https://www.webmd.com/vitamins-and-supplements/msm-methylsulfonylmethane-uses-and-risks#1
richard07199 EileenH
Posted
Thank you, Eileen. I don't think I'll be trying it.
amkoffee
Posted
So I had my Crp and sed rate checked again today and my sed rate is now up to 72. But my rheumatologist thinks it might be from inflammatory arthritis and not PMR. I don't think she is right but I'm starting Enbrel. Hopefully it will help.
BettyE amkoffee
Edited
After watching last night's BBC News I'm not feeling optimistic about health care either here ( UK ) or USA.
Even my very limited grasp of statistics makes me doubt that accepting sponsorship from a firm that manufactures stents to decide the best outcome versus by-pass surgery for heart patients is ideal.
Five year survival rates were better for by-pass but three years were more favourable for stents and the allegation of some prestigious researchers is that publication of data was doctored.
I used to be a confident optimist.
EileenH BettyE
Posted
There is research that showed there is considerable bias associated with the sponsorship of studies...
I suppose one aspect there may be is that stents can be used for patients who are not well enough to survive or wait for by-pass?
richard07199 EileenH
Edited
Several years ago a study was published that concluded that the amount of sodium in one's food had no effect on blood pressure. It caused a little bit of a stir until it was revealed that the study was sponsored by Campbell Soup.
amkoffee BettyE
Posted
That kind of thing happens all the time here in the US. researcher want to apply for large grants and sometimes their results are not want they expected so they write reports that do not state the actually results. And doctors are approached by pharmaceutical companies who offer them big money to prescribe they newest drug.
nick67069 amkoffee
Edited
they are not necessary lying , just twisting numbers to enhance desired goal. Example is one of the studies of the effectiveness of statins ... Published results were that statins decrease incidents of heart attacks by 36%! Isn;t that great?
However if you look at actual study results, you may get different impression. Group of patients on placebo had 3.1% incidents of heart attacks compared with group on statins , which had 2%, so relative difference between them is 36% ( 1.1/3.1). If they told patients that reduction is only 1.1% would they be able to sell statins - the most profitable drug in history - topped 1 trillion US$ last year.
BettyE amkoffee
Edited
Politicians call it being economical with the actualite.. It's still lying in my book.
EileenH BettyE
Posted
Lies, damn lies and statistics ...
The primary reason one of the most important people in a study group is the statistician is because they can tell you how to design the study and which tests to use to mould the results to show what you want it to show ...
amkoffee EileenH
Posted
As a matter of fact my brother in law is a Statistician in New York City and he has told me that very same fact.
BettyE amkoffee
Posted
What price integrity?
EileenH BettyE
Posted
Is anyone familiar with that word these days????????????
BettyE EileenH
Edited
Just a few thank goodness.
They probably don't get much thanks in the corporate world but come good when neighbours need a hand. I bet those people mucking in with the flood clearing aren't charging an hourly rate.