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I'm being screened now for cystic fibrosis as a 49 years old adult who has been treated for asthma and then bronchiestesis anyone else ?

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fiona89941
fiona89941

I have been treated for asthma all my life and now bronchiestesis . Since my grandson was born with cystic fibrosis my consultant has taken lots of bloods and I've had one sweat test which I've been recalled for a second.? My daughter is a carrier it seems. Bronchiestesis is very similiar symptoms to cf.

0 likes, 4 replies

4 Replies

  • John_N_B
    John_N_B fiona89941

    Posted

    There seems to be a lot of mis-diagnosis with lung disease. I have been treated for Bronchiectasis for many years but was recently told that I had emphysema also. Cystic fibrosis was a life threatening illness previously but I believe treatment has advanced in recent years and I even know of someone who has been taking part in tials for a genetic based treatment and she is now virtually free of symptoms. You have to have the apprpirate genetic makeup for this treatment to work though, so it is currently not suitable for eveyone. At least it's progress and a reason to be optomistic. There doesn't seem to be any such advances in the treatment of Bronchiectasis though. Best wish and I hope you get good medical care and support.

    JohnNB

  • Operalyn
    Operalyn fiona89941

    Posted

    Bronchiectasis can be part of other complaints - CF sufferers have bronchiectasis but other things too.  Bronchiectasis is a form of lung damage not really an individual illness, if you see what I mean.  I have asthma and chronic sinus problems as well as bronchiectasis and loads of allergies too. 

    I have had sweat tests in my younger days but luckily I didn't turn up the CF gene.  This is a really specialised topic so I cannot offer advice but I hope that the specialists sort you out properly.  It could be that you are a carrier but don't actually have CF yourself.  Anyway, I wish you all the very best and hope that you have positive news from your sweat test.  As I say, I had more than one myself because they weren't conclusive so who's to say.

  • denise21511
    denise21511 fiona89941

    Posted

    Hello, i have just be told that i have Bronchiectasis,dont know anything about the condition,i also have Asthma ,im getting some pain in my chest , would this be normal ?
    • Operalyn
      Operalyn denise21511

      Posted

      I saw a professor at the Brompton Chest Hospital in London who told me that some people with bronchiectasis do get chest pain but they are not sure why.  Did you ever get chest pain from asthma?  Sometimes when my chest is tight it hurts.  Bronchiectasis is lung damage basically, it is not curable but it can be helped with various techniques and drugs.  You should really see a lung specialist to get the best help, lots of GPs don't seem to know that much about it.  I do daily physiotherapy, use two kinds of puffer and take antibiotics when necessary for chest infections (I keep a supply in the house).  Go to your GP and ask him or her where you can get help and information - I am very lucky, we also have a COPD clinic at our practice and the nurse practitioner is full of good advice.  Good luck - if you do the physio, rest when you are tired and drink loads of water you will feel better - and take any tablets prescribed, of course.  Keep smiling.  I have had this condition for over 60 years!
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