I'm being worked up for a probable diagnosis of lupus. Have a few questions about symptoms
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Hi my name is Stephanie. I am 30 years old. This past month has been terrible for me. Started with swelling of the feet and ankles. When I say swelling I mean real pitting edema. Gained a lot of weight mostly from fluid retention. Then developed pain in ankles, knees, and knuckles with the most severe pain in the knees. I get very warm and sweat a lot. Was hospitalized for a week and discharged with no diagnosis. My inflammatory markets were high such as my ESR, CRP, and have a positive ANA. Went for a second opinion which is leaning towards the diagnosis of Lupus. Anyone out there that can help me with some ideas with what they have experienced. Thanks!
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NurseStephy31
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PuraVidagg NurseStephy31
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NurseStephy31 PuraVidagg
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lynne69494 NurseStephy31
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NurseStephy31 lynne69494
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pam_87693 NurseStephy31
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i have both Sjögren's and Lupus. Like you I had a positive ANA, but it really depends how high the titre was. If it's 20 or 40 it might be just because you have some form of infection. If it was higher you may certainly have either Sjögren's or SLE or both. Try not to worry, if your a nurse remember your in contact with germs full time. However if your worrying please do come into my FB group. My Consultant is the President of the BSSA the charity got Sjögren's if your a UK citizen. We are there for friendship and knowledge, we don't do politics we work as a FB forum for the diseases mentioned. Good luck and stay calm🍀
NurseStephy31 pam_87693
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NurseStephy31 pam_87693
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pam_87693 NurseStephy31
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all capitals I have Lupus, Sjögren's and a rare form of EDS which gives me Lupus and Type VIII the peridentitis type from my father. So to quote a neurologist I'm amazed your still alive. I have to say so am I after all I have been through but I was amazed they didn't do a genome test!
NurseStephy31 pam_87693
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