I'm confused

I have been on a lot of meds for these ailments and when it comes to fibro I am yet to find a drug that actually works completely or so you can walk around pain free and not feel like a zombie. The Drs are very reluctant to give strong meds because of their addiction and how easy it is for your body to become immune to the drugs affects. Because the town I come from has an extreme load of drug abusers it makes it very hard for people like us who actually need the medicine and who aren't gonna abuse it to be given anything of great significance to help us.

Sounds like you have a lot of stress. I get it. 

Many of us have way more stress sometimes than we can handle. 

My so has alcohol use disorder. Every day is a nihtmare. Yet Iknow I do my very best and try not to let his effect my health.

some days are tougher than others. I know I have days that I,just barely hang on. I also am mr hopes only caregiver and is a lot of work.,

i do do feel as long as there is breath there is hope. I hold on to what makes me happy thru each day, and let go of the rest. 

I cannot change all the stress for you only you can decide how and what's best in your case. There is never a clear answer only know that this too will pass. I hope things will be better soon. 

Have be you been to a pain clinic or Physio therapy. It's worth a try in Physio they teach ways to learn how to exercise without pain and get past the area of difficulty we face with different daily Heath challenges. 

 

Thanks for the support and yes I've seen a rheumatologist and in my town they diagnose you and then pass your care back to GP. Also I've seen a physio used up all my sessions for the year. And the only excersicesi have found useful to me are hydrothereopy but it's only good while your in the water. And that's good I suppose to stay pain free for a little while. But like a lot of people keep saying to me that it's all in my head and until I can fix those issues then I can't fix the physical. I have had numourous drs spychologists psychiatrists and other drs say that a lot of my physical pain comes from my mental pains. That's why I get so confused. It is the same with the autoimmune diseases I have they say if my mind is stessed my physical body will too.

hi im sorry to hear your not coping well, but dont listen to doctors saying your stress is causing this it can happen and doesnt help matters but it isnt the cause especialy the autoimmune disease which is certainly not. if any doctor wont help change them and anyone you know should be supportive if not dont listen to them. i used to be someone who thought just get a grip and get on with it but have now due to ill helth myself learned the hard way you cant. if you need support well being or a similar group are very good your GP should know of someone in your area who visit and help you deal with whats going on. which autoimmune disease do you have ? im only asking as my doctor is leaning towards this with me and i have burning and stinging thought to be neuropathy but nerve conduction test ruled that out. good luck

Hi Vicky thanks for your support.

I have asthma, eczema, copd, psoriasis and arthritis, I also may have ms too but that hasn't been diagnosed completely yet due to how long it takes for a diagnosis. I have had eczema and asthma my whole life and devoloped the others in adult hood after the eczema almost killed me.

Infact that's pretty much when my whole body started crashing and I was getting all these other issues one by one. Everytime I when to the Drs I had a new diagnosis and it hasn't stopped since 2011. I'm scared to go to Drs now even though I know I need them.

anytime you need support im here, sounds like me ive been ill since 2012 diagnosed with fibro 2014 but ive also had so much conflicting advice i feel like ive been in a medical maze hitting dead ends for so long with no real answers. have a look at the lymes disease forum or google lymes symptoms they are misdiagnosed as fibro and MS people get sicker with numerous growing list of symptoms and nothing ever shows up on test making it look like its in your head.

Thanks Vicky I'll check that out because I've been tested for lime disease before and it didn't show up as me having it. I am interested to know why they can't make a better lime disease detector if the one they have isnt working though.

These Drs claim they have all this fancy aquipment to diagnose things yet their tools don't seem to be doing the job.

Hi Lorraine,

Keep pestering your dr if your not happy with the treatment he has you on or do what I did and switch Drs till you get one who atleast understands fibro better I have switch Drs so many times trying to get help and more understanding of what's happening to me. It does take time and it is very draining but there has to be a dr somewhere that has insight into what is happening to all of us.

Thanks Lorraine for your blessings. People can see when I'm sick cause it shows on the outside as well as in. I just think there is either a lot of people who don't understand and don't want to or they just don't care. It becomes extremely frustrating when the Drs get like that cause your sick and all they are after is your money. Or atleast that's how they make you feel. I know people have to make a living but is it worth it at the expense of the person who's paying your salary and your supposed to be helping? I think some Drs have forgotten what they became a dr for.

As for other people if they aren't sick like you or have ever had to go through the same sort of problems they seem to not care and not willing to understand. I'm glad I found this sight because even though everyone has a different opinion everyone seems to care and just having people to understand I think has been a great help