I'm confused about what's happening next!!

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Please can someone help - 2 yrs ago I had a scan which showed a 7cm fibroid. About 3 months ago I had another scan and it had grown to 12cm. I felt pretty confident it is a fibroid as my dr said it's normal for them to grow. I was referred to a gynecologist and she has scared the life out of me. I found her quite aggressive and hard to understand. she said there is a chance it's malignant as it's grown so quickly. I have to wait now for an MIR scan and biopsy. I'm absolutely petrified. After all this time to now be told this seems completely crazy.

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14 Replies

  • Posted

    Hi ali86305,

    I know it's hard but firstly take a few deep breaths and force yourself not to panic and to become calm and peaceful. Fribods love to feed of negative food and energy!

    Then I will pick up the phone to the Gyno centre and ask to speak to someone in charge and make a complaint against then Gyno specialist who saw you. Why? Because it's seems like she has shown you zero duty of care as a patient for what is an extremely sensative issue. Ask to be seen by another Gyno - it's your right as a patient.

    I did this last year it took me literally crying on the phone ton the director of the surgery who I demanded to speak to before my experiences started to change for the better.

    I would do the above as soon as you can. It's your right to bother feel like and to be treated care.

    Hope this helps.

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    • Posted

      Thank you Skim - I spoke to the hospital and although I haven't seen another consultant yet, they booked me in for a biopsy on monday and mri scan next week. At least I will get some results - I will ask then to see a different consultant to discuss the future plan. I'm really worried sad I received a letter from the consultant yesterday saying it is a suspected sarcoma. It's so rare though - I will be so unlucky if it is !! Xx
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  • Posted

    Some GP,s are aggressive these days however a female should be more understanding ... I am a patient who suffered 5 of these damn things, unless you have experienced them it is patronising of her to speak this way.. Mainly Fibroids are made up of Fibrous tissue and feed off of your oestrogen levels female hormone...I never had an MRI but found the fibroids were causing regular UTI's due to a cystocele a occluded bladder not voiding, plus heavy bleeds and other problems re sex..so worry not!  these are very common issues and if you are young and want a family get it sorted ASAP..good luck!
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  • Posted

    This sounds similar to my growth. I found out about it when it measured 11 cm. unfortunately, my Obgyn detected it on an ultrasound when it measured 7cm, but did not inform me. It grew from 7cm to 11cm in 16 months. My dr said this growth was typical. I am happy to report through various trial and errors and not really being sure what has worked, I got it to shrink about 39% in 6 months. Initially I requested a biopsy, but dr said if I was concerned I should have it removed because a biopsy would only give results for portion that was biopsied. I opted against the surgery. I am still on a path of natural healing and prayer. I hope all goes well for you and you find a dr you are comfortable with.
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    • Posted

      I have tried many things and I could not say what exactly has.worked. currently I am eating vegan, no coffee or alcohol. I am taking vit e, i3c, egcg, bioflavonoids, iodine, and enzymes. In the past I have done acupuncture and Chinese herbs, maCA root, vitex, tea, just so many things. I also try to keep up with castor oil packs and detox bath soaks. Managing stress I think is a big thing also. I try to have control.over everything in my life and I am trying to realease this control to God through prayer and faith. Good luck on your journey.
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  • Posted

    Can I ask you since you already knew you had such a large fibroid to begin with why it took you two years to have a routine check-up. Normally a routine check up should be every year and if you have a fibroid it should be checked every 3-6 months. Where you no worried about your fibroid when you were first diagnosed?

    Anyway this is pretty normal for fibroids to grow fast. Mine grew from 1.5cm to 5cm in just 6 months but in between those 6 months i had one ultrasound to monitor it. It was growing and dr advised to have it removed via laparoscopy (recovery time 1wk-6wks) before it got too big and I would need open abdominal surgery which takes months of recovery. During surgery they found more fibroids the ultrasound did not pick up and removed those as well.

    I suggest to anyone that if they have a fibroid to get it checked every 6 months dont leave it till its too big as it can cause big complications if left untreated.

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    • Posted

      Hello Helen

      I was not so worried about it initially as it caused no symptoms. I was advised that unless I had symptoms I shouldn't worry. I was not advised to have regular check ups either. I don't know why that is - but the situation is what it is now. I need to think forward - not question why I did or didn't do something. Thank you for your reply though.

      Ali x

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  • Posted

    this is true ..
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  • Posted

    Hey Ali, my 19 y/o daughter's fibroid grew from 9 to 11.5 in a few months. I googled and went into overdrive as I read about sarcoma (cancer) went to Gynae consultant who reassured us that fibroids are fast growing tissue. He would only be concerned if this happened in a post menopausal woman. My girl is on her second Zoladex implant then a myeomectomy to remove the F. Try not to worry. Good luck with your journey x
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    • Posted

      Hi Hev - I have my biopsy on monday - bit worried. I was wondering if your daughter suffered side effects from the Zoladex? I read they can be quite bad for some people. Hope she is doing ok!? X
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  • Posted

    I would go back to my gp , there's a number of reasons why your fibroid could be growing quickly . Have you never been offered any medication to shrink it ? You can ask to see someone else , I even asked to see a different consultant at a different hospital miles away and even though this delayed my surgery I would never have found out about Esmya.
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  • Posted

    How did everything go for you? Any posts on follow up on fibroids????? I have a Subserosal fibroid and its 4.6cm outside the uterus. Scared it can be cancer like misdiagnosed. I'm 25yo I don't have irregular bleeding or heavy bleeding, my periods are normal just bloated here and there and a cramp comes and goes here and there where the fibroid is located. I do smoothies every morning veggies, spinach, fruits, flaxseed, chia seeds etc. I found it helpful with my cramp that I use to get up to 8x a day now it's down to 3-4x a day might be the flaxseed since it does help with inflammation of any sort
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  • Posted

    Hi

    I can totally relate to your story. I was diagnosed with 3 fibroids back in 2008 in Glasgow. They were checked initially every 6 months but as my symptoms improved and they didn't grow in was told every 12 months was OK. In 2011 I moved and shortly after I began to have symptoms. I went to the local gp who insisted on me and just new partner (2 months into the relationship) being tested for STIs which we did. All negative so she prescribed me the mini pill. After 3 months of bleeding every week I finally got referred to gynaecologist who didn't think it was fibroids and took me off the pill and told me to continue to take naproxen for the pain. At this stage my medical records had still not arrived from Scotland and in fact never have. Ibut the meantime I switched to another gp surgery and he was not happy with the plan so he refered me back. Still nothing done. In 2014 i suffered a misscarriage and as it was my 3rd I was referred back again. This time they did some tests but we're adamant I had endometriosis. The scan did reveal a fibroid but as it was on a stalk outside the uterus it couldn't be the cause of my pain and I was scheduled for a laprascopy. Due to further issues I changed hospital and consultant to have this done but the report she was sent made no mention of the fibroid so when I went for the follow up she told me I had a fibroid! Anyway after a lot of further delays in finally had it removed on Wednesday but even when we were in the hospital waiting for the op the surgeon (yet another different doctor ) was saying she didn't really think it was worth having removed cause it was small (only 4 cm) and probably wouldn't cause any problems! During surgery which I had done without full anaesthetic but with spinal anaesthetic and sedation they brought me fully conscious to say that she found another large fibroid and wanted permission to remove as this would be trickier and could cause damage but she felt it had to come out as it was pressing on other organs and explained all my symptoms. I have seen the fibroid and it weighed a kilo. If it would have been left up to the consultant I would not have had the surgery on Wednesday and it would have never been found. I am lucky I have a great GP who listens and he was just as persistent as we were to get this looked at properly. My husband dropped my discharge paperwork in on our way home yesterday and he has already phoned to say he will be asking the hospital to look into the treatment is received. Sorry this is such a long story but please do make sure you get another consultant as I feel I would have never got here without changing. I am lucky that my husband was very persistent as well and understanding as it has been part of our relationship from the beginning. It is to early to say whether having the fibroid has worked as I'm still in a lot of postoperative pain but there was a sense of satisfaction when the surgeon admitted she was wrong. Good luck and I hope it works out well for you ☺

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