I'm confused, need some input

I went through many years of this, as well and was given the Chronic Fatigue Syndrome diagnosis.  It was only the past month or so that I have even become aware of Sjogren's and like you, all the symptoms fit. I am awaiting the test results, but I'm okay either way because I've lived with these symptoms for a long time anyway. I am not an expert by any means on the tests but they say: "Anti-SS A- a positive result seen in 75% of those with Sjogren's Syndrome , may also be positive with SLE and and scleroderma." The info on this site might help you: https://labtestsonline.org/understanding/analytes/ena-panel/tab/test/

Good luck and hang in there.  Just be patient.

Hi Stephanie im so sorry you are suffering I have a positive ANA and its a blood test done to see whether you may have an autoimmune disease. I have similar blood results  to you and I have lupus, sjogrens and a few other autoimmune illnesses. I see a rheumatologist who keeps an eye on things most people who have these diseases usually have an array of medication to keep it under control. Fatigue is a major symptom of these diseases and unfortunately one that isn't treatable but you do learn to live with it, Keep me posted and good luck, I live in the UK

No Stephanie im 67 now but I was a legal secretary and was diagnosed over 17 years ago I went from full time to part time to having to quit because of the fatigue I thought that if I went part time I could combat the fatigue but as you are now probably aware it has a mind of its own and although I was able to rest on my days off it still reared its head on my work days and I couldn't cope any longer I literally fell in the door and went straight to bed and too tired to eat so I wasn't looking after myself. Once I stopped work I was able to sleep for two or three hours in the afternoon which although didn't cure it it did help me function. ANA antinuclear antibodies the correct term is the main blood test they give you for lupus and most other autoimmune diseases. just as a matter of interest I had glandular fever when I was a child and a lot of these autoimmune diseases stem from that

I am 75 , only fiagnosed 8 years ago for SS but have umpteen symptoms that fit as I have discovered. Until you mentioned it, I did have glandular cever at 17. When I was a blood donor they used my blood for serum as it was so high in antibodies. I believe that’s also a symptom? 

Reading all your posts made me think about my childhood. I too was very sick when I was a child for about 6 weeks. I had what they called “yellow jaundice “. Then about 20 years ago started having weird symptoms and diagnosed with SS 6 years ago. I’m now 71 and have learned to deal with the fatigue which at times was profound and couldn’t get off the couch for a couple months. Both times the fatigue got better but I’ve never been the same. At least I can function and walk 2 miles a day even with neuropathy in feet and ankles. 

Hang in there and hope your fatigue improves.