I'm convinced I have motor nuerone disease

Posted , 3 users are following.

Hello!

My name is Cristian, i'm 35 years old.

Six months ago my fingers on the left hand numb and i did not have strength in my fingers.

I can not eat with a fork and similar things.

Muscle between the thumb and forefinger is disappeared three months ago.

Dificulate to express myself(but not in my native language) 

My voice is changed.

Eyelids tremble.

Orientation issues.

Difficulty learning new things and remember them.

Drowsiness during the day.(very often lately)

Trembling of the body or parts of it.(rarely)

Sometimes trouble breathing.

Burning pain on my wrist.

A period numb my both hands while trying to sleep.

I had leg cramps while trying to sleep or if i just lie in bed.

I recently started having pain in back of the neck.

Poor balance or impairment of my gait(happened a few times in recent months to feel i can not stand on my feet)

My left hand and the left leg are verry weakness.

'''''''''''''''''''''''''''''''''''''''''''''''''''''''''''''''''''''''''

I went to the neurologist to University Hospital Lewisham and the result was this:

On neurogical examination today I could appreciate:

Normal cranial nerves,no nystagmus,no cerebellar signs,

normal power in right arm and right leg,

deficit of power distally in the left hand particulary in thumb abduction and adduction,

in finger abduction,in wrist flexion and extension,equal to 4/5.

I could also appreciate slight deficit of power 4/5 in left leg flexion and extension,

normal sensory sistem in upper and lower limbs,no muscular fasciculations,normal

deep tendon reflexes in the right limbs generalised reduction of deep tendon reflexes

in his left limbs.

In order to clarify the nature of his simptoms I have requested for am MRI whole spine which showed:

The vertebrae shows normal algnment and marrow signal.The cranial cervical junction and the

spinal cord appears within normal limits.No signal changes are seen ithin the cord.

Axial scans were acquired from C3-C4 to C6-7 vertebrae and also through the last three lumbar vertebral disc.

There is no spinal stenosis or nerve root compression at eny level.Impression:No significant

abnormality to explain patients symptoms.

I would also be grateful to colleagues into the Neurophysiology Department,King"s College Hospital

if they could arrange for an EMG/nerve conduction study in order to rule out muscular or nerve involvement.

I have also requested for blood test.I will forward to you the results of the pending

investigations as soon as I receive them.

I hope to get an answer!

Thank you from my heart and I wish you good health!

I apologize for my poor English. 

0 likes, 3 replies

3 Replies

  • Posted

    It does not sound like MND.  You willl have to wait for your blood tests to rule out other diseases that can cause the same symptoms.  The only thing that I would strongly recommend is for you to go on a very high dosage of vitamin D3 2000iu's twice daily or even higher 6000iu's daily.  If the cause of your symptoms are MS then you will notice symptoms becoming better within 3-4 weeks.  Taking vitamin D should be a long term things and it will keep MS symptoms at bay if it is MS.  From my experience food is not a cause, but can be if vitamin D is not taken daily in high dosages.
  • Posted

    hello christian99805, there's certainely no problem understanding your english! your symptoms COULD be the result of MS (multiple sclerosis), but i notice that you aren't presently being given a lumbar puncture, LP (this is a good tool in identifying MS). while LP isn't particularly pleasant, it might be something that you're offered, there's no mention of myelin issues, from your MRI, though?! neurological problems can be difficult to diagnose. i'd recommend keeping a dated record of your symptoms, for both your own information and for possible future medical examinations.

    i would caution anyone AGAINST taking vitamin D without having first had blood tests to check their levels, i took vitamin D and it made me feel quite ill. 

  • Posted

    i forgot to say, taking high dose vitamin D ius NOT a way to 'keep MS at bay;, as was stated. it MIGHT be of some limited benefit, it is currently NO cure for MS.

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