I'm fed up!
Posted , 6 users are following.
Just a vent. Got multiple stones, thickened gallbladder, inflammed bile duct and still abnormal LFT'S. Yes, I'm on the list for gallbladder surgery and yes, I've said I'll take any cancellation.
I'm sitting here with a stitch again and haven't felt well for the past few days. Tired, flu like, chills, itching and intermittent stabbing pain on the right side. I'm trying to get out and walk and focus on the fact I will get surgery eventually. It's so hard. I've been waiting since mid October for surgery and still no date. I had a pre op in November. Tick tock tick tock. I went to my GP a week ago to see if I can be bumped up the list a bit. No, I can't. But he did send me for a blood test to see if my abnormal LFT's have risen at all and if they have, he will write to the consultant. No promises. I had to wait a week just to have the blood test. Had it today. Tick tock tick tock. Hospital said it will get to my GP in a few days. Tick tock. I'm so bored with waiting! I'm fed up with the diet. Fed up with listening for every gurgle in my tum. Fed up with worrying that any niggles could land me back in hospital. I just want it OVER! Rant over :-/
0 likes, 37 replies
k60077 lisa98146
Posted
The Hospital said firstly it was a Hernia, then polyps , then stones, then polyps and now stones again.I am sick every day.My stones are like wearing a really tight belt , they catch on my ribcage and ive had a few collapses on the bathroom floor due to the worst pain ever .I cant move my right side too much and feel extremely swollen .I also get reflux, my stones are over 2cm and growing .
I was told i need to have an urgent referal , but I am too scared after 5 years of indecision and uncertainty .
lisa98146 k60077
Posted
k60077 lisa98146
Posted
I got discharged because I complained about the 3 hour wait in the clinic, I had to leave without appointment , when i had to pick my disabled child up from school.I got a formal "sorry" from the then chief executive , then they discharged me, knowing full well the paiin i was in.
My latest "urgent referral" cannot be done until March and that only for yet another consultation. However I am getting much worse ...
Did anyone else get really bad headaches and pain low down on the body ? I have the constant pain in my shoulderblades and my GP says to me if it gets worse go to A and E ,the worst hospital in the country in special measures since 2013 . Formal complaint is in again , they dont like to reply though.Im Just seriously ill at the moment and extremely fed up as quality of life is substantially impacted by the lack of care....
I am now considering legal action because if you pay you can have the same surgeon as on the NHS and it can be done within a week..
lisa98146 k60077
Posted
k60077 lisa98146
Posted
lisa98146
Posted
As I was treated as an inpatient, I didn't get the benefit of choose and book.
I've learned that a private hospital just over the road from the NHS hospital takes patients via choose and book now.
Just had a conversation with them. If I was private, I could have my gallbladder out within 2-3 weeks. 😢
However, NHS patients have to wait around 12 weeks from seeing the consultant.
Now as I've already waited almost 16 weeks of 18 weeks right to treatment, I have made a complaint, then I can ask to be treated at this hospital instead. If they agree to refer me as urgent, there is a chance I could get it done with a minor breech or no beech of the constitution.
I am annoyed because I didn't get the benefit of choose and book. If I had, I would have had it done by now. Sickening. However, there is some hope I may actually get this done sooner.
nana_loon lisa98146
Posted
have you had blood results back yet ? linda
lisa98146 nana_loon
Posted
nana_loon lisa98146
Posted
lisa98146 nana_loon
Posted
nana_loon lisa98146
Posted
lisa98146 nana_loon
Posted
nana_loon lisa98146
Posted
my weakness is cheese could of killed for a cheese and onion sandwich yesterday but not even tried a tiny amount when i ve been gratting it for others.people say to me they cant loose weight i tell them you would if you had to go on the gall bladder diet . you wont cheat when it means agonising pain if you do. We should bottle it and make a fortune . im hungry now talking about REAL food .
LittleMissDolly lisa98146
Posted
Last year when I got referred from my GP to a gastroenterologist I had choose and book but couldn't get an appointment anywhere as there weren't any. So, the Secretarys at the GP's arrived it. I went to see an NHS one but at a private hospital. Can't say I was Impressed. Yes, the hospital environment was nicer, but I wasn't treated as well there as I was at the NHS hospital I got through choose and book for another issue.
lisa98146 LittleMissDolly
Posted
With some of the problems I had at my hospital though, I won't be fussed if they don't treat me now. The hospital was at breaking point back in October as I was kept on a cancer ward for a week before I could get a bed in general surgery. I don't think they planned for the winter very well when day case theatres have had to plug the gap for A+E admissions for an entire month, cancelling loads of elective surgery. I was told by PALS that they have not yet decided how to manage the situation. It's a bit late now isn't it.
What concerns me most is becoming a breach. It's a concern for us all actually. Once you have breached the 18 weeks, then you just become one in a statistic. Hospitals get judged on the number of breaches. Once you have breached you cannot breach again but other people down the list, can breach. This means it's not really in the hospitals interest to treat you quicker but it is in the interest to prevent other people from breaching. It's absolute rotten timing for us here. Becoming unwell from the outset of a winter that the NHS was under pressure before winter started.
I am going to fight with all my might while I'm still within the 18 weeks. I'm even prepared to travel to get this sorted. I need to get fixed so I can recover and find work. I really need to get well asap.
LittleMissDolly lisa98146
Posted
You've made some really interesting points there mate. Poor planning for a winter that in effect was very mild. Apart from the horrible rains and all the horrible effects of that on folk. It'll get worse going forward as there hasn't been any cold snaps to kill the bugs off.
And I hadn't thought of the 18 week rule that way but you're right. I'm 7 weeks over the 18 weeks now. I've not mentioned it and neither have they. I might keep it that way for a bit
But my one thing I would say to you is this, if the gallbladder is really badly infected and they want to wait until that's cleared up a bit don't dismiss it as you are so desperate to have it done. Although I'm undiagnosed and they don't know what the post operative mass is in the gallbladder area, the best guess is that it is a gallbladder remnant from difficult removal surgery where it had to be taken out there and then. Whatever it is its caused be no end of issues the past year that have proved to be worse and longer lasting than the pesky gallbladder was originally.
On Tuesday when they phoned to cancel the second surgery because of the bed crisis, they said they would phone me by Friday at the latest with an action plan for me. I heard nothing. Spent yesterday afternoon trying to get hold of him. Nothings doing, excuses etc. Phoning me next Friday now. It's ridiculous. So once the shambles of the beds is resolved, then I have the hurdle of is the Consultant going to be around. It's pathetic. At the end of the call I think he regretted telling me to have a nice weekend! I'm ill mate, I don't have a life. Oh yeah sorry I go supermarket once a week if I'm lucky.
I wish you well in your fight. Imagine if folk like us didn't have the drive and determination to fight our case. All we want is to be well. You have a lot of support here. Be kind to yourself to xx
k60077 LittleMissDolly
Posted
I can eat tuna and cheese but cannot eat a plain biscuit. Its very stressful because if i eat the wrong item i vomit , but the catch is that you dont know its the wrong item. I am always hungry which i dont understand either as i start every morning feeling sick , then hungry , then when I do eat I feel sick. I would really really like some chocolate , but I know that will make me very very sick... I have looked at you tube and I have ordered some apple cider vinegar its meant to help .. we shall see
take care xxx
lisa98146 LittleMissDolly
Posted
It was very telling ringing the private hospital. They are contracted to carry out so much NHS. At first, they didn't know I was NHS. When I queried the waiting time of 12 weeks, they said, oh no, we'll have you operated on within 2-3 weeks. So I said, marvelous! Just to let you know that I am NHS. The tone changed straight away. Oh NHS, yes, err, well that will take longer. I need therefore to get the general hospital to request I'm seen urgently by them and transfer my care. Then they will get me done quickly. It's the same consultants. They are contracted to do part NHS part private. They spend half their time in the private hospital and the other half at the general one. This is why I'm not too concerned about the treatment. But it's going to be a battle. Hospitals do not like complaints. I don't blame them but I'm in this situation. If they agree to transfer my care, and I get my op sooner, I'll drop the complaint. I'll even allow them the two weeks they have strangely added on to my RTT time. Got to be worth a try. If I sit here mulling over an operation date sometime in June I'll probably do myself in :-(
cynthia89958 lisa98146
Posted
lisa98146 cynthia89958
Posted