I'M GOING TO WRITE A BOOK, VOLUNTEERS PLEASE?
Posted , 6 users are following.
Hi everyone
I'm serious when I say this!!!
I've been a member on here since January and found everyone's experiences very moving and so VERY VERY DIFFERENT when it comes to medical treatment.
A lot of us seem to have very very similar symptoms, if not exactly the same, but why when we live in different parts of the UK is the treatment so different - from when we have an MRI scan, to what medication we are prescribed, to how long we have physio (if at all), and whether we are offered an operation and how long we have to wait.
I've now got another best friend and my Mum both suffering with pain down their buttock and leg but even their treatment is different from each other, and different from my treatment, and they both live very locally :shock:.
I would really appreciate your help with this please :D :D. What I would like to do is write a book, like a diary of people's experiences and armed with this information, I'm going to contact every single Orthopaedic and Neurological surgeon in the country to tell them our different stories and ask them why there is no consistency in treatment.
If you're interested in taking part, please email me or pm me and we can start talking about your story. Of course, your story will remain anonymous if you wish it to be that way, however I would like to quote which part of the UK you live in or the NHS trust you are under. Although these stories will include those who decided to go Private for their treatment for whatever reason.
Thank you sooooo much, looking forward to hearing from you all. I'm not sure what this will achieve but I find myself getting ever more frustrated with our differing treatments :x
Love and gentle hugs to everyone
Jude xxx
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0 likes, 20 replies
Guest
Posted
I'm definitely interested if you like... might make a change as I'm 18, had it since I was 15.
Get back to me
xx
little_nimrod
Posted
Hi There I am new to the site but you can count me in, I will look at the Q's on the other post and then reply!
Just wanted to say a wonderful idea and the very best of luck :wink:
Guest
Posted
Jude I am on you own page - count me in and let me know what you need !!!
Good on you xx
Guest
Posted
You can definitely count me in. I have had to retire 5 years early from my job a Medical Secretary. I even complained to the Welsh Health Minister and got fobbed off by her, I have all the paperwork for this if you are interested. My pain has returned after my nerve block last August, on a bad day I feel really sucidal, my life seems as if it has been taken away from me. It was my GP referrring me to an exercise referral scheme who caused all this, I since found out that sending older women to a gym can cause more harm than good, my life feels like it has been destroyed for ever. Let me know what you want.
Carole
Gdee
Posted