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I m HIV positive. Started ART medicine but its side effect killing me. Plz help me

Posted , 3 users are following.

Vih
Vih

Hi, my frnd age is 33 yrs . two months back diagnosed as HIV positive. (As per me, its two yrs back but diagnosed recently) His CD4 is 471 and viral load was 6.5 lakh copies/ ml one month back. He started ART medicines 12 days back. Salt TLE Tenofovir TDF 300mg, Lamivudine 300 mg, Efavirenz 600 mg. BUT now, he is observing a lot of problems in body from last 12 days. It seems HIV attacking his all body parts. His current symtom: undiagnosed fever, High ESR upto 55, Skin rashes, Pain at right front/backside of chest, MVP (mitral valve prolapse), right kidney stone 5 mm, wt. Loss, PIN POINT at few points of body. Plz let me know 1. WAS IT his MISTAKE STARTING ATTACKING HIV by ART medicine. 2. Is this ORTHODOX allopathy meant for improvement or killing u ?? 3. If we stop this ART, wat could be consequences or risks ? 4. How can we rule out CANCER at early stage as he has suspected CYSTS PIN POINT pain ? Plz help n save a life. Tnx in advance.

1 like, 13 replies

13 Replies

  • aksns61
    aksns61 Vih

    Posted

    I hope your going to doctor that specializes in HIV and Men's health. If not, do it immediately.  Your HIV specialist would be the best source of information regarding your symptoms and capable of sorting out pre existing conditions from new ones. The meds your on are excellent and are standard here in the US. I've always had a GP and a HIV infectious disease specialist. Thats who I go to if I ever have any problems. FYI, I have been HIV + 15 years undectecatble, in great health, age 74, NO side effects for my meds. Never stop any meds without going to a doctor first and getting his/her opinion. PS I am biased and seek out gay MALE doctors.

    • Vih
      Vih aksns61

      Posted

      Here in INDIA, these medicines are provided by NACO which is a govt organization. Their doctors dont have sufficient knowledge to guide for associated co infections like TB, CANCER etc. They just follow guidelines.. Which says "conduct CD4 test once in 6 months.. If less than 500, start lifetime ART. Then conduct CD4 again after six month regardless whether this medicine is suiting u or not. If u know any blood test to rule out initial breakthrough of CANCER in body to avoid being late, plz let me know. Also if u know any US TRUST doctor who can provide some guidance to HIV patient on email, plz let me know. Btw u r a lucky champ who was able to handle this medicine prolonged with no side effect. Perhaps, all fingers r not equal..

    • aksns61
      aksns61 Vih

      Posted

      Hi Vih

      I don't know much about the practice of HIV prevention in India.

      Best recommendation is to visit the website called "The Body". they have physicians who can answer some of your questions. Its got great advice about meds and men post concerns and accomplishments that overcame health issues. HIV isn't cancer, its a virus that destroys your immune system. Once your on ART, and your CD4 rebounds, your going to be just fine. HIV is now easily treated, especially if found early. Good luck!

    • Vih
      Vih aksns61

      Posted

      I know hiv isnt cancer.. But hiv kills ur immunity. Once u start attacking with ART, it attacks u with full strength n start hiding in lymph nodes, bone marrows etc. U were diagnosed when ur VL was very low at early stage, but my frnd diagnosed at VL 6.5 lakhs copies/ml which is relatively very high.once hiv fight ur CD4 , It also lowers ur immunity to very low levels.. which in turns, increases the chances of getting co infection like TB and CANCER at early stage. Seen few admitted patients with HIV induced TB and CANCER.. a bitter truth.
  • loo52033
    loo52033 Vih

    Posted

    How did either of you find out you had it and how did you get it just courious
    • aksns61
      aksns61 loo52033

      Posted

      I was tested at an HIV clinic; results came back Poz. Began seeing a HIV specialist immediately to determine any helath complication. They said I was in early stage, my CD4 was 1200 and my VL was low but detectable. 6 weeks into treatment, my VL was undectectable.  By starting treatment early It disabled the virus. As part of a research program I was in, my meds were stopped for 3 years with testing every 3 months. After 3 years, I was CD 4 of 1000, and VL was not detectable. My doc put me on Truvada regimen to minimize any transmission of HIV to others- that is now called PrEP. He was way ahead of his time. Im now on a new med that stretches out the dose over a longer period of time to avoid med spikes. Its another reason I go to an HIV specialist doc.He is always looking for the best way to treat HIV and MY health needs. I exercise regularly to keep muscles and bones in good condition.
    • Vih
      Vih aksns61

      Posted

      Can u help my friend be a part of any such research program which really care for the patient and help remove this deadly virus effectively. If u can provide some inputs it will be highly appreciable

      Emis Moderator comment: I have removed the email address as we do not publish these in the forums. If users wish to exchange contact details please use the Private Message service.

    • loo52033
      loo52033 aksns61

      Posted

      That's really good to hear, that it can be sorted are the Meds for life then?

      What made you want to get tested though was there initial symptoms I don't have any but have been thinking of all the people I have ever slept with unprotected and it's quite frightening how nieve i have been and gulable

      Knowing that they where ppl who continuosley slept around with others so even if I just slept with two wrongins I have had all there other partners I didn't realise till now , age 28 sad

    • aksns61
      aksns61 loo52033

      Posted

      In 1995, testing became easy to do, meds became more reliable and easy to take, and the gay community wanted everyone to know their status. I simply went and got tested. Yes, 1 pill a day.  In trials now are a monthly injection and a possible vaccine. I never had any symtoms, most do not, because in the US very few develop AIDS.  Testing is simple and cheap, and mostly free.
    • Vih
      Vih aksns61

      Posted

      Re opening this thread due to some emergency.. The website u told didnt send me any response till yet. As i also donot want to b on LIFETIME killing TLE which really hv lots of CONS although considered best till now, Can u help me get some HIV research program details in india or US so tht i can b part of it and later can help myself / my COUNTRY with new inventions on HIV..
    • aksns61
      aksns61 Vih

      Posted

      The online resource called The Body has information on medical trials. India DOES have the National AIDS Research Institute, they have online information about trials. Know your numbers- you should be tested about 3 or 4 times a year to make sure the meds are working.

      The CDC, NIH are US based resources. The UK and Australia also have online resources. Being HIV positive is NOT AIDS.  Get informed about HIV and  meds. Let your doctor know that you are having a problem.

    • Vih
      Vih aksns61

      Posted

      Govt. Doctors here in india are highly careless. After starting TLE, they left ur body undiagnosed for another six months. My some KFT/LFT params got disturbed after start of ART med , globulin protein raised high to 192, chloride electrolyte raised, sodium electrolyte low, ESR raised to 55. Gastritis, pin point pains at certain points of hand n legs, high rashes, urine burning sensation n undiagnosed fever upto 100 F all left undiagnosed.They used to say for every symptoms tht everything will b normal aftr 2 months of TLE. private doctor allergic to HIV patient n used to refer to govt doctors of NACO for treatmnt. Govt hospital didnt provide facility to get VIRAL LOAD test done.. They jst do CD4 twice in a year NOT EVEN CD8. None of medical policy covers HIV n outside LAB test very frequently, r very costly for a jobless middle class person like me. Still i will fight for a proper treatmnt till end of life..Becoz of which, only final option left with me is to b a part of any research treatmnt to get timely n proper treatmnt. I hope for a day when HIV can b cure sooooon...
    • aksns61
      aksns61 Vih

      Posted

      Since your living in a different country, with its own health care system, its to your advantage to find a India-based HIV support group that advocates for you.  Keep searching the internet. Perhaps someone on this website can help you.  Bset of Luck
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