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hello. I’m 37 yrs okd and have had 4 craniotomies to decompress and try to eliminate what chiari malformation has done to me. Since December of 2017, I’ve been suffering with so many symptoms fro severe head pain to numbness and weakness to double vision and so on. I returned to my previous surgeon but he seems that he is finished in helping me. So I went to the chiari institute thinking they will be able to help me since this is there specially. The dr said that my ventricsls are larger than normal and that he thinks spinal fluid is not being absorbed properly and that a shunt will be the next step. But befor that is to happen, I have dro endure a very painful spinal tap which the spinAl fluid pressure measured 14- normal. The dr now emails me and says that because the test was normal, there is nothing that can be done for me. I’m totally lost and confused. I’m still experiencing may symptoms and these drs expect me to just live with them. has anyone been through similar experiences?
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