I'm new to this illness, and I have questions (long post)

Posted , 1 user is following.

I’m a 43 year old woman, non-smoker, in otherwise good health, and recently diagnosed with Tietze’s Syndrome/Costochondritis. I first experienced it a couple of weeks ago after walking my dog for an hour up a very steep hill in cold weather (something I have been able to do in the past without that much difficulty). The first thing that alarmed me was the fact that it seemed to take an entire day for me to get over this. I had this feeling in my lungs like I was about to start with a bad chest cold, although I wasn’t coughing. Just a general achiness, somewhat laboured breathing (I was certainly able to breath, but it just felt like it took a bit more effort than normal) and a tight feeling in my chest. These symptoms lasted an entire day (although I was able to go about my normal daily business). The next morning I woke up with chest pain, just a feeling of tenderness/soreness/pressure going up both sides of my chest (just above the breasts towards the sternum). It was at this point that I went to see the doctor. She checked me out by listening to my chest as I took deep breaths and thought all sounded normal and clear and therefore ruled out asthma. I had to blow into this contraption like a breathalyser (I’m assuming it was to test lung capacity) and my reading was 310 (I’m about 5’5”, and was told my reading should be closer to 380). Surprisingly, this low reading did not alarm my doctor. After taking a history and feeling around on my ribs and chest, she diagnosed me with Tietze’s Syndrome (but also used the term Costochondritis). All she said about it was the fact that ‘young, fit’ people get it, and it is usually caused by overexertion and deep heavy breathing, overuse of the area around the ribs (which made sense to me). She also said I should lose weight and get more exercise (I am about 3 stone overweight, but was also this same weight last year and did not have these problems, although I was still walking just as much!). One wonders if she would have taken my symptoms a bit more seriously if I were thinner?? She seemed to imply that if I increase my fitness level (which is of course always a good idea) then this thing will be under control. With that she sent me home, no prescriptions, no advice as to treatment nor how long this would last. As it turns out these symptoms persisted for another day or two (not so much the chest pain, which went away rather quickly, but the laboured breathing persisted). However, I have to say the symptoms disappeared as quickly as they presented themselves.I just made the decision not to overexert in cold weather again. I thought that was the end of it! Well, yesterday I took the dog for another walk, going up a hill (not as steep as the last one) and made a really conscious effort to take things slowly and not overexert. It was very very cold (in fact it was freezing fog, so it was extremely damp as well). I live in Cumbria, which was the coldest place in England yesterday! After I came in from this walk, again, I felt like my lungs were burning, like the cold air was just trapped in my airway and in my lungs. This feeling persisted all night, and this morning I have again awakened with that same feeling of laboured breathing (I am able to breath normally, it just feels like it takes a bit more effort – very difficult to explain, as I don’t wheeze or cough, so to the casual observer I am breathing normally, but it just feels a bit tighter). I also have the same localised chest tenderness/soreness going up the same area around the sternum (not a severe pain like the rest of you describe, just an achiness). I expect these symptoms will disappear the same way they did a couple of weeks ago, but I am really worried now. My questions are:

Did I get the right diagnosis? Should I get a second opinion and see a different doctor within my local practice?

Is this something that is going to recur again and again, especially during the winter? I am only 43, but feel as vulnerable as a pensioner. Obviously, the trigger is walking uphill, because I was fine before I did that.

Everyone on this forum complains of chest pain. What about breathing difficulties like the one I describe? Is this a normal symptom of this condition?

Help, please!

0 likes, 3 replies

3 Replies

  • Posted

    Hi

    Yes I think they probably have made the right diagnosis as what you describe about the breathing is exactly how I feel! Although it seems you maybe lucky so far that you don't seem to have had the chest pains as bad as what they can be... Or have the pains been unbearable?

    I'm not sure if you've read my recent posts...my symptoms seem to have been almost cured by this asthma inhaler symbicort but I do not have asthma but my breathing problems were just as you described. I too gave a poor reading when doing that blowing thing etc and what many tietze sufferers find is that once you have triggered a 'flare up' it usually is very likely to reoccur with minimal effort again like a strained muscle. I say this inhaler 'almost' fixed it as I have found that if I do anything that requires 'more breath/lungs effort' then it can quickly return and takes days of rest to go away again but without the inhaler I found it didn't go away at all. [size=9:00161cb415][/size:00161cb415]

  • Posted

    Sorry me again! What you may find is that it comes back 'easier' say after walking up less steep hills in the future and I would expect that the more it happens the more the pain will increase (sorry not what you want to hear) but my point is that if this doesn't happen and your breathing symptoms continue to be more of a problem than the pain and the pain doesn't get worse then maybe it's not tietzes and I would then return to gp and/or see a respiratory specialist.

    Hope you get well soon x

  • Posted

    Hi Fran! I do hope that my first post was not too rambling. I think I was suffering from terrible anxiety when I wrote that! I feel much better now. Thanks for your reassuring responses (and, yes, I did read your other post re: the inhaler). I am most grateful for your suggestions. The reason I waited to reply again is that I had made another appointment to see another doctor and the appointment was earlier today. I wanted to wait to see what he had to say before going back on this bulletin board.

    He was very reassuring and did confirm that it probably is Tietze's, although he has ordered me to have an ECG, Cholesterol Blood Test, and to have my Blood Pressure checked, which are all very good things anyway to have done! I am having those done next week, so fingers crossed everything is ok! He also told me that it was probably not a good idea to walk uphill again so soon after the first episode because the flare up needs time to settle down. I never had a doctor tell me to take less exercise before !! I'm going to continue with gentle exercise, which does not affect me at all. I'm going to stay out of freezing fog, too, the next time that happens! He asked if I ever had asthma, and no I have never had it, but I probably have certain sensitivies that trigger these sorts of symptoms. As for the chest pain, no, it wasn't unbearable, although it was definitely unpleasant, and unlike heartburn pain (which I also get), I can't take anything for it to provide instant relief. What seems to be the pattern, however, is that the symptoms go away within 48 hours. I really feel for everybody else on here who has it worse....it's very scary, but I guess once you know you are going to be alright, that should take away some anxiety.

    Thanks again for your replies and I hope you continue to have success with you inhaler treatments.

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.