Posted , 11 users are following.
does anybody know how much does it keep going up in another couple of weeks they are adding something else to it to make it work even better they said . bit worried my eyes are not right and i'm getting pains in my chest more than normal any help in words would be good thanks max
0 likes, 31 replies
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mary76396 max007007
Posted
Hi Max, unfortunately burning feet, ankle pain, finger pain etc. are all symptoms of RA. It takes a while for MTX to kick in and so they usually prescribe Predislonone for a while too. They also prescribed Hydroxycloroquine for me too. Although they helped I still had massive inflammation (hence the burning sensation) in my hands and feet so after a bone scan to see where the inflammation was they put me on a biologic fort nightly injection. It's a guessing game as to which meds help each person the best which is why they will try different things. I am now just on half (10mg) dose of MTX as liver damage occurred on 20 mg, and a Cimzia injection every fortnight but can also take Predisnolone when and if needed, I also keep Endep in to help me sleep and Palexia pain relief if things get bad.
make sure you get a good rheumatologist, one that you can call if things are bad and who will make time to see you, tell them how bad things are for you and don't be afraid to ask questions. We are here too if you need friends who are going through the same thing. Good luck.
max007007 mary76396
Posted
treezsh max007007
Posted
max007007 treezsh
Posted
Big thanks to you treezsh i worried at the moment i got up in the 0330am and took more of the methottrexate it should have been prednisolone because i forgot to tale it earler i should not have taken the methorexate until friday coming my mind not right some where will see doctors again next tuesday they take blood every fornight and that's when i see the doc but a big thanks sometime you do feel on your own and its nice to here possive words thanks again .
mary76396 max007007
Posted
Max, make sure you tell your Doc that you are forgetting, or mixing your meds up a bit as taking to much Methotrexate can be very dangerous, this stupid disease does strange things to our brains and Methotrexate can cause brain fog, mix that with the exhaustion of RA and that's where most of us seem to be so don't be afraid to let your Doc know as it's more common than you think. Good luck.
max007007 mary76396
Posted
bob_2020 mary76396
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Hi mary i have been put up to 25mg of metho now been on it for few yrs now i was diagnised with RA in 2014 tried biologics as well had to phone rhumey yesterday got an appointment for december but if there is a cancelation will get that..being put up to 25mg is no doing much for me so far i have been forgettin things alot of late can metho really play tricks with the mind all i need to read i was told metho is the gold star drug for RA where does one go from here if metho i dont feel is really working proper i dont go a week without a flare up somewhere in my body bloody gettin me down big time...sorry to go on mary👍👍
Gloria814 bob_2020
Posted
MTX doesn't work for everyone despite it being called the gold standard Sometimes a combination of 2 meds works better. Prednisone short term and pain med can be helpful. I hope they find the right medication for you
and hopefully someone will cancel and you can get in to see your doc sooner Did the biologic not work for you?
mary76396 bob_2020
Posted
Hi Bob, as far as I know, and I'm not a medical expert, a lot of these drugs and the RA can cause a brain fog, exhaustion can do it too. MTX can take a while to work but is usually good at reducing pain. It is usually used in conjunction with another drug, like Hydroxycloroquine. They could possibly give you Predisnolone short term to help with flares. You say you took a biologic? Why did you stop. A biologic is usually the last line of defence and if one doesn't work there are several more to try. If you are seeing your Rheumy in December write down all the questions you want to ask and a list of your symptoms before you go and good luck with reducing your pain.
bob_2020 mary76396
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bob_2020 Gloria814
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mary76396 bob_2020
Posted
Bob, I feel so sorry for you, it sounds as though you are really going through the mill at the moment. I'm in the middle of a flare myself and feeling very down and miserable but nothing compared to you. I've just been to the physio and that helps a lot, maybe ask your Doctor what physio could do for you (especially water based), They've just fitted me with compression gloves on my hands and wrist supports and they are helping a lot. and certainly ask your Doc what the swallowing problem is just in case it's not RA related, it could be an allergic reaction of some kind. Good luck Bob.