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I'm so confused? Any advice/ help support would be appreciated

Posted , 6 users are following.

victoria_59764
victoria_59764

Hello. I'm a 34 yr old mum of two. I've joined this site for advice due to a diagnosis of complex cysts on my ovary. This was diagnosed through an MRI for a slipped disc in my back. Anyway......... Over the last week or two I've been experiencing flu like symptoms. I feel like every part of my body hurts ( morning is the hardest time. I can barely put one foot in front of the other). I'm going freezing cold to boiling hot and sweating. I have an area on my leg which is agony to touch and numb ( I thought that may be the disc). My arms and legs twitch as I'm layed in bed. I've got very little energy and the most basic tasks I'm finding a huge stress on my body. I feel exhausted even when I've slept and I'm so tearful and emotional. It's taking every effort to try to get on as normal eg get up in the morning, get washed, dressed and go about my day ( I work as a carer but not yet returned to work after disc and news of possible cancer on my ovary).

Anyway I got so desperately upset two days ago. I was in so much pain all over. I started to do my research and found this condition. As I read more into it I soon discovered that nearly every symptom was like what I'm experiencing. I'm beginning to wonder if I've suffered with this for yrs.

I started to think back and for yrs and yrs I've suffered with tension headaches, depression, IBS and abdominal pains. I had meningitis when I was 18. My husband had an affair and left me. I nearly lost my youngest daughter to a rare lung condition. Could any of these traumas have caused this???

Over the last few weeks I've been going to the GP. Not once has this condition been mentioned. I'm just prescribed pain relief and told I have a lot to worry about at the moment!!

I'm in such a state. I just want to feel well again!! I'm doing an access to nursing course and due to begin uni in September, but I'm beginning to think my dream of becoming a nurse is going to be short lived if I feel like this. Im also due to be maid of honour at my sisters wedding in July. I'm so scared that if I still feel like this I'm going to let my sister down.

I'm sorry for such a long account but I'd really like to know your take on this... Could this be fibromyalgia and the answer to why I've been unwell on and off for yrs??

Many thanks to you for taking the time to read this.

Best wishes

Vicky xx

0 likes, 21 replies

21 Replies

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  • vicky89033
    vicky89033 victoria_59764

    Posted

    hi, i would write a letter to your GP surgery with the symptoms bullet pointed and ask to be reffered to rheumatology this usualy works better rather than going in and trying to explain it all. it could also be an autoimmune problem which can be tested for also i would look at lymes disease forum as your symptoms and thoose of fibro are similar and as you will see on the lymes forum get overlooked or put down to fibro. its worth having a look at the Horowitz lymes questionaire online. I hope you are taken seriously by your doctor dont give up even if you feel like your having to pester them. good luck i hope you get an answer soon
    • victoria_59764
      victoria_59764 vicky89033

      Posted

      Thank you so much for your reply Vicky. You've been so helpful. I've heard of Lymes disease but don't know anything about it. I will have a look.

      I'm hopefully seeing a doctor today. I'm very nervous about calling as I've been in and out so much in the last few weeks, what with slipped disc, cyst on ovary and now all these symptoms. I think they think I'm a hypochondriac!!!

      If I get no where I'll write.

      I'm just so scared and frustrated I really am.

      Thank you so much for your help.

      Best wishes

      Vicky xxx

    • vicky89033
      vicky89033 victoria_59764

      Posted

      hi, dont feel like you shouldnt be going to your doctor so much or let them fob you off making you feel like its all in your head ive been through this but didnt give up. A good doctor will understand and should help you. it takes time and can be confusing when we have so many symptoms and there are so many illnesses with similar symptoms there are lots of test that can rule out the obvious but others are difficult and require different specialist. if you read anything about lymes and need advice on testing get intouch with lymes disease action they will liaise with your GP as the basic test are very unreliable and doctors rule this out on false negative results. good luck
    • victoria_59764
      victoria_59764 vicky89033

      Posted

      Thanks once again for your very helpful reply.

      The GP wants to wait until I've got all my upcoming appointments out of the way before she makes a referral with regards to fib.

      I can kind of see why but once again it's just that frustrating wait. By the time I get a referral my appointments should have come and gone ( if all ok). I guess I have to trust her judgement. I just hope I'm not in this agony in the meantime! She is checking my bloods on the 25th for thyroid and not too sure what else but she listed lots.

      Can I ask with the symptoms you get with fib. Do you ever get spasms in your arms and legs where you jolt or flinch without being able to control it? It actually wakes me up.

      Today I've been in agony with the right hand side middle of my back. The cyst is on the right but obviously would be lower. I also suffer terribly with pain in my right hand/ fingers and arm. In the morning I can hardly move it or lift it!!

      Just finding it all very frustrating sad

      Thank you again

      Best wishes

      Vicky xx

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