I'm so scared
Posted , 5 users are following.
Hello all I'm very new to this but desperate for some support. I'm 34 yrs of age, work as a carer and about to begin a degree in nursing. Three weeks ago I had an MRI for a suspected slipped disc. That was confirmed as well as a cyst on my ovary, I had an ultra sound yesterday which confirmed a 5cm cyst on my right ovary. Only a few hrs later my GP called saying that he wanted to arrange urgent blood tests this week and an immediate referral to the Churchill hospital. He mentioned that the cyst was lots of cysts within a cyst. Then he mentioned the C word and I just crumbled. I can't tell you how petrified I am. I've not slept and burst into tears ever 5 minutes. My appointment should be within 2 weeks. I just want to know now. Is this likely to be cancer. Any guidance or advice would be so so welcome. Many thanks
0 likes, 11 replies
Michellestar87 victoria_59764
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victoria_59764 Michellestar87
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Yorksgirl victoria_59764
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I know this sounds scary, but I think what you have described sounds fairly standard. I am not medical, but I think the cysts within cysts (daughter cysts) is a good sign. The blood test will be CA125 I imagine which they do to get a likelihood of ovarian cancer. But you will read on here that a raised result is not conclusive by any means, as lots of things can affect it including having a cyst. It's just an information gathering exercise I think. The vast majority of cysts are benign ( have a look on the NHS website) so try not to worry. They have also found it when it's quite small so if they need to remove it I imagine it may be keyhole (laparoscopy) rather than a bigger laparotomy.
I know it's easier said than done but try to stay positive. If you read some of the medical sites the statistics are hugely reassuring. They say things like 99% are benign. The likelihood of cancer is even less if you are pre menopausal. I know statistics aren't everything, but I do think they help to put things in context. Of course until you have had all your investigations done it will be a niggle, but medics know what they are doing, and you are in the system now. Really hope everything works out, and good luck with your training. X
victoria_59764 Yorksgirl
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I can't thank you enough for your reply and kind words. Have you been through anything similar? Sorry I don't wish to be nosey.
Best wishes
Vicky
Yorksgirl victoria_59764
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Anyway, from finding it to having surgery will be just over ten weeks, and it is over nine months since I first had symptoms, which unfortunately were not picked up on. It is a bit of a waiting game, but I think it is easier to handle once it stops feeling urgent. I am in a lot of discomfort, and I do look full term pregnant now, as it extends up to my rib cage. The consultant said its like carrying twins the size it is now.
I really hope you get your results back quickly, as not knowing is hard. Best of luck Victoria 59764
victoria_59764 Yorksgirl
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Best wishes ( your in my thoughts)
Vicky
sheri44006 victoria_59764
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victoria_59764 sheri44006
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Best wishes
Vicky
sheri44006 victoria_59764
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mary2016 victoria_59764
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Your story sounds very like mine, so I hope this is reassuring. I had an MRI before xmas for back problems and a 5-6 cm cyst showed up. No symptoms that I 'd been aware of. A pelvic ultrasound showed a 6 cm complex cyst (i.e. with solid elements) including a daughter cyst, so I was referred on the 2 week fast track. The GP assured me it was very likely to be benign, but as I am 51 and the cyst complex they would investigate. Blood tests were CA125, CA199 and a couple for inflammation, all came back normal. Then the gynae sent me for another MRI to confirm the findings. All very fast. I was told it was probably a dermoid cyst, 99% of these in adults are benign. I was also told that they would remove it, probably within the month, along with 1 ovary.
Then everything slowed down and an appointment 4 weeks later told me the cyst was benign dermoid, as expected.I think I should have insisted on hearing that sooner than 4 weeks, and told the consultant so when I saw him another 4 weeks later! Anyway, alarm over, back to good old NHS slow lane and I'm waiting for a date for surgery. Given my age and perimenopausal stage we have agreed he can remove both ovaries to avoid any future problems. But they can remove a cyst and leave the ovary intact sometimes, and will probably recommend that for you given your age. In any case you can still conceive with 1 ovary. It feels horrible to be thrown into cancer scare without any warning so I really feel for you. But there's a huge chance it will be fine, and they are just being careful.
All the best, Mary
victoria_59764 mary2016
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Anyway I'm sorry for bombarding you with questions and droning on. I know it sounds silly but although I have amazing support from friends, family and Partner I still feel so isolated for some reason.
I can't thank you enough for your reply.
Best wishes
Vicky
Xxxx