I'm so tired of being robbed of Joy in my life

Posted , 6 users are following.

I am only 65 and I feel like 80 plus. At this point I just don't know how it will all end. It's like waiting for my train to thrown off the tracts.I go through daily pain and exhaustion, Because of issues it is a major effort....because of nerve pain..... to even take a shower. I don't go to slleep until about 3 in the morning because of hietial hernia reflux pain when I lay down and try to sleep. Here arethe thing I have and had t6o gto through;

At ptesent  REFLUX/GERD WITH HIETIAL HERNIA NEAR DIAPHRAGM...motility test done but waiting for surgery. Diverticulitis. ADRENAL TUMORS.Stomach spasms A-Fib.Tightness in chest, and shallow breathing

                            HISTORY

Polyneuropathy 2015. Operation for L5 Disc herniation/ compression and traversing right S1 nerve root and a Synovial lumbar Cyst was removed 2015. Occipital Perifiral Neropathy and nerve stimulator in neck 2012 (so no MRI). Neurogenic bladder 2010, had Bladder stimulator but taken out later. Diabetis 1997 Inflammation of disc degeneration DX in 1996 Fusions at C-5 and C-7 and shoulder surgeries in ' 93 and '01. Malrotated stomach surgery at birth (scare tissue removed in 2004).

FUN FUN FUN,harolleyes

 

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14 Replies

  • Posted

    Morning David72297 I totally understand how you are feeling, and where you are coming from. Having fibro has robbed of so much. No one has any idea what its like to live with it, the daily battles we have.I too have had diverticulitus very painful. I also have diabetes high blood presure asthma and thryroid problem. All we can do is take each day as it comes, and get through it as best we can. Paceing ourselves is important so do what we can when we can. I think treating ourselves and having something to look forward to, eg coffee with friend also helps, do anything to give ourselves a lift Stress worry dont help our condition but its not always easy not to have in our lives. If we can keep calm be positive not stress worry it does help where our pain is concerned. Take care .
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  • Posted

    Hello David. You have been through a lot and sounds like you still have some other medical conditions to contend with. On a permanent basis they will take some handling. I'm not surprised you're feeling as you do. Kaz is right when she says we need to pace ourselves and do what we can when we can.Also it's good to have something to look forward to,as she says, to give us a lift. I wish I could be of more help,but since having this condition I'm more or less the same,Things which once took me minutes to do without thinking,now take forever. I'm looking at a pile of washing which needs to be put away,just to fold it and lift it causes pain,so I've put it off. There's another pile in the machine waiting to be pegged out~Iit's painful to lift my arms up to the line~so I'll have to psych myself up to do it. I can't believe it's come to this. I've found this site to be helpful,inasmuch as others are in the same boat and can give good advice. Best wishes Dot.
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  • Posted

    Hi David

    No-one like pain and you have been through alot. I hope you are able to enjoy one day at a time and pace your day accordingly to what you can do?  Pain is no fun thing to have and staying positive and stressfree unfortunatley the way forward.  Meds work for some and not others.  Life is a challenge and we must make the most of life and not allow the illnesses take over.  The mind is a powerful thing we all have and able to control it can be a challenge.  Have you tried CBT (Cognitive Behaviour Therapy), it's a mindfulness of the thought process that we go through each day.  

    Hope you get the answers you need.  The people on this forum have fantastic advice and support for all.

    Take care and gentle hugs wink xx

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  • Posted

    Poor you David..I have no words...bundle of issues there...really hope and pray things get better for you...loosing your joy..is also loosing any strength you may have too..really feeling for you...agree with Kaz...you must pace yourself..you must look after you..easier said than done sometimes...it's very very hard to be positive when you have sooo much negativity going on...but it's a real weapon if you can manage it..be blessed David..we are all here for eachother all the time..we are from all over the world, so anytime you can't sleep...someone will be here for a chat..you will probably be very helpful to others on here too...:-) xx
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  • Posted

    I can't imagine , I haven't had nearly the health issues in my past and I feel as though Fibro has aged me a few decades or more.Through the "I don't have a life and my dreams are on hold, becaus now I run my lie betweepain, soctor appointments and fights with the insurance company on what medicines they will pay or and when" I have learned that when the pain is "controlled" I need hand surgery and bladder surgery . I hope that ife starts to ease up and give you some relaxation and fun.
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    • Posted

      It's soooo hard diagnosisalie, if we stress too much over everything that happens to us, that would be our life..we have to try turning things around for our own sanity.,,and if we don't do it..no one else can..so I guess it's all up to us...fun is something very random now unfortunately..when it comes our way, we seem to grab it for our lives.,,certainly don't take anything for granted anymore...I just look to those people in the world who are soooo much more  worse off than me..and seen to have lost all hope, you see it in their eyes...a bit sad to say but they give me great encouragement in my world....do hope you have a nicer weekend be blessed..:-) xx
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  • Posted

    Poor you David, having gone  through such alot. We are all here for you. 

    anytime, day or night..smile

     

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  • Posted

    Hi David...  Like yourself I've had a few surgeries in the past for different things and still have the reminents of old injuries to contend with under all this Fibro stuff.  I to struggle some days with low moods, as one cannot help but be reminded of what one has lost and what one misses in their life.  

    I have come down the ladder so to speak, and now financially drained because of a lot of issues to do with my MVA, and ongoing legal and specialists finances.  I even have a 4WD that is rotting away now as I cannot use it due to limited $$'s now.  Apparently I'm told from another branch that I should be getting other assistance and on another type of 'supported living' benefit now, but it's very difficult to get any further assistance they are talking of.  What one branch offer another definitely doesn't and go to great length to deny.  Terribly really.  No consistancy between branches.

    My car is/was my only independance, and much the same as have a internet connection, also helped to keep me 'sane'.  

    So what one has to do is suck it up, and I guess try and look at the simple little things like may give you a little joy, lightening up.  Even if it is just watching the sun come up  or going down.  Bird watching, craft, artwork, music and converstation.  You have to try and sometimes create your own sense of joy..  I definitely know it's hard, real hard.  BUT I have to remind myself daily that it could be worse, I could be living under a bridge in the cold.  

    So my Artwork, my cat and dog, a TV, and my 'now recently broken' Laptop (the screen part has fractured off the hinge.  I am unable to shut it.  It must have had a knock at some point, but I don't ever remember doing anything to it, not ever dropped it either.  But anyway it has to last me...  out with the good old Plumbers tape. lol... and my cell phone ARE ALL my physical elements that help keep me sane. The REST is all nature...   and throw in the odd physical converstion when I see some one occasionally.  

    So your not on your own David with feeling like your stripped of Joy in life..  We maybe stripped of some things, but hold to good memories, and look for again those small things that have that 'feel good' element/quality...We are somewhat limited but we aren't 'in the ground yet!'...  :-))

    And a good Vent at times does help clear the gremlins out for a while aye!!

    Hugs

     

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    • Posted

      Thanks for the pep talk, Deb. I needed that. Yes, sometimes I wonder just what is life doing that's good that I can hang on to. I count my blessings then. Then I feel kinda ungrateful. Memories help alot.  Family heps to. However, I do wonder why I have to try to be "Normal" so hard. Especially nowdays when what I thought was normal is all but gone. I must hang on even tighter now. I alway thought life would make more sense later on, but I was wrong. I wonder...really wonder where I would be without God bringing me and my wife together. She has a way of making life have more sense. However, even there, I do not want to  depend on her too much. To suck her own personality away. It is the LITTLE things in life that means so much now. I have to admitt that my getting older and limited can easily be depressing to me and really sucks sometime.

      Thanks again. We will talk again.

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