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Hi All,
I've been reading through the posts and my sympathy to all of you who struggle with our horrid condition. Been on Carbimazole for 2 years now and my levels are usually fluctuation towards the high end. Due to my high sensitivity to meds, once I up my meds to 15mg a day - within a week I notice hypo symptoms.Is anyone like me though?
I have the worst periods - tenderness from day 21, spotting and period feeling for 5 days before period comes, heavy, clotting and painful?
Also, I am 4- or so kg's heavier than I ever have been. I'm only 5"3 and I'm petite so every kg shows - when I've not been pregnant I've always been my normal weight and now if I eat carbs and don't excercise I immediately put on weight and I can't seem to shake off those 4 kg's no matter how I try! My psoarisis has also flared up again.
My endo told me that some nodules even when a FNA result show's clear have been biopsied after surgery and found to have traces of cancer and has advised me to get my thyroid removed. I'm really really nervous though on being on thyroxin all my life. Please tell me that you've BTDT and you're ok? What was it like for you? Please give me some advice!
Thanks in advance!
0 likes, 9 replies
Sue1247 Laraley
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linda187 Laraley
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jeanette25032 Laraley
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RossF Laraley
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Once you get the dose right, its just not a problem at all - all my symptoms vanished and when my energy levels were sorted. I just wish I'd had it done earlier.
That said, when my thyroxin was wrong, I was in an awful state, so you do need to get the levels right - but that's a case of knowing they can be sorted and a bit of trial and error. The blood tests said all was OK - it wasn't. I've no idea what my levels are now - I just do it on how I feel.
It all sounds horrendous before hand but actually once you are over the op, its not at all bad - and you get all your prescriptions free :-)
emmaj43 Laraley
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linda187 emmaj43
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Laraley
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Ok firstly, while I am an english citizen (english by birth) I actually live in Melbourne, Australia (yes, a commonwealth but not England by a far stretch!)
Secondly, I don't have cancer, The last biopsy (called FNA for fine needle aspiration here) I had was 2 years ago and it was clear. I have around 5 nodules, the largest is around 4cm - funnily enough none are really visible and neither is my breathing compromised at all.
I would never have considered removing my thyroid if my endo hadn't scared me with the facts that even with biopsies, they cannot sample the entire nodule and where they don't sample, can have up to a 10% chance of having cancer.
Great! (sarcastic) I'm a mother of young children (4 of them - 10 years and under) and I work and I'm really going to kick myself had I known that I let questionable cancer prone nodules develop in my body with my knowledge because I don't want to have the operation.
In the meantime, the appointment with the surgeon is end July and I have a convention to go to interstate a week beforehand when my period (ugh!) is expecting. My periods are really bad news for my body, I usually catch whatever is going around and I feel horrid and not myself. I cannot excercise, my tummy gets very sensitive and I am low energy.
When it suddenly clicked that Carbimazole may be excarcerbating it, I looked online and found your forum.
You've been helpful. I am wondering though whether I should look into L caritine when I may have the surgery in 2 months time? What do you think? Also I have been on the naturapath route before I started the meds and while it controlled my symptoms it actually never moved my levels a notch.
So Linda187, is there a actually medical review that I can show my endo in the meantime ?
Has anyone tried going on the mini pill to help with the periods and did it help?
Has anyone ever heard of someone being allergic to thyroxin? That is my biggest fear!
linda187 Laraley
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linda187 Laraley
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