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I am new to this message board and would like some feedback regarding surgeries and the spread CRPS. In May of 2014 I had surgery to correct a hammer toe, and two claw toes, along with removing a neuroma nerve on my right foot. Everything went great and I was out walking every morning for the first time in over twenty years. I was feeling great, enjoying the fresh air, sunrise, and the chorus of birds. Then without warning the pain came back putting an end to my walking. Believe it or not, it took two years and four doctors to determine that the nerve had grown back. So on April of 2017 I had surgery again, but this time around it turned into a nightmare.
I had my heart set on getting back out on my morning walks, but what I got was worse pain followed by deep depression. For me the summer of 2017 was the summer of endless tears. By Fall I had gone through physical that didn’t really make that much difference. It was then that I first heard about Complex Regional Pain Syndrome and the doctor gave me a series of 3 nerve blocks. When they totally failed the doctor said that there was nothing more that could be done medically, and suggested therapy to learn to live with it.
I have not had the therapy, but mentally and emotionally I’m in a much better place. As much as I wish I could, I can’t go back and decide against having the surgery. And now today I scared because I need knee replacement surgery on my right knee. Actually scared is putting it mildly, it’s more like I’m terrified!! Would the CRPS spread and my whole leg feel like my foot does? I’d like to hear about others experiences regarding this.
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