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I may have LS and can the shrinking and fusion cause no sexual satisfaction?

Posted , 6 users are following.

Kiss_n_Tell
Kiss_n_Tell

I was just Googling why my lady parts seem to be vanishing and came across this site. I've asked my Ob w/o much help or advise.

I'm 55, BC survivor at age 42, ER positive. After 5 yrs of Tamoxifin, I noticed my lady parts were irritated & I was tearing easily during sex. My husband has never been patient or gentle during sex ever and I began to tear and bleed every time. Couldn't use steroid crms. Husband always said something was wrong with me as to my body's inability to tolerate his aggressiveness and to never orgasm. (That messes with your mind right there!) He's not affectionate. 6-7 yrs ago Ob put in an IUD due to ongoing extended states of arousal with no instigation or relief. That helped that situation. Husband & I have not been sleeping together for the last 5 yrs. Wierd situation. Last yr at Ob noticed my labia was almost gone. I've also noticed my clitoris looks wierd too. Just wondering if reversal is even possible at this point and if my clitoris fuses and everything else vanishes, narrows, etc will I ever be able to even have sex or a possible orgasm again? I've been trying to remedy my living situation so I could enjoy the rest of my life with the hope of some healthy sexual activity as well. Now I'm just more depressed! What 'cha think girls?

0 likes, 8 replies

8 Replies

  • hanny32508
    hanny32508 Kiss_n_Tell

    Posted

    Rough road you have been on.  My small labia have never returned.  But everything else is fully functional again.  Though gentleness is needed.

    ​With the help of at first clobetasol, later baking soda baths and rinses, special diet (leaving out added sugar,  alcohol, gluten, caffeine and only eating good plain yoghurt) I have managed to control LS.  Also borax baths and rinses have continued to help with improvement.  Moisturizing with coconut oil always.  Regular dilation to keep the vagina open. All this hard work did pay off.  

    ​Also am taking supplements like:  Vit. D,  B12,  vit C. have proven to sustain my good health.  And eating home cooked meals from fresh ingredients made a difference.  

    ​Hope this will help you with a good start towards better health and control over LS.   

     

    • Kiss_n_Tell
      Kiss_n_Tell hanny32508

      Posted

      Thanks hanny.

      Where can I find the amounts of & ingredients for the Borax/Baking soda sitz baths and the rinses? Every day use? Rinses how often? I've never heard of them before today.

      And thanks, I'll check into the clobetasol cream. Ob has never mentioned it. Wonder if it's like an estrogen cream? Thanks again. Might be a small light at the end of the tunnel after all.

    • sarb73328
      sarb73328 Kiss_n_Tell

      Posted

      Clobetasol is a steroid cream, not estrogen. Make sure you moisturize lots (coconut oil, emu aid, castor oil etc ) as well as using borax or baking soda. Alistar's thread 'An experiment with Borax' is well worth reading to explain about borax and amounts to use. 

    • hanny32508
      hanny32508 Kiss_n_Tell

      Posted

      I put 1/3 cup of baking soda, or 1/6 cup of borax in a full bath.  For the rinses I put two to three pinches in warm water in a Perin bottle.  After rinse I apply some coconut oil.  Has really helped me a lot.  

      ​Next to that check your diet - many of us have an intolerance to added sugar.  And then there is the avoidance of stress, at least as much as possible.  

  • caroline16811
    caroline16811 Kiss_n_Tell

    Posted

    I think the best thing you did was kick your husband outta the bedroom hon !!!!You've had more than your fair share of bad luck and I'll health and deserve s break bless you. It's very common in most cases of LS to have the architecture of the vulva change. My inner labia disappeared years back and my clitoris is trying to go the same way but I'm fighting too keep it even a semblance of it. I use steroid cream twice a week as a maintenance and barrier ointment ( Hydromol) every day to moisturise and keep urine from affecting the area. Also after each visit to the loo I spray water with a couple of pinches of bicarbonate of soda in. Most important is to rub the steroid in for 90 seconds and try to gently stretch the area of you have no tears .

    I also use dilator just once a week to ensure the vagina stays stretchy. But you may need to use it more initially I started by items it 4 times a week. They graduate in size from really narrow to average penis size so you can take your time and with plenty of lubrication keep the vagina "open" If you've just started using steroid cream you've probably been told how many times to use that. No soap or perfumed products should be used in our near the vulva. I use Aveeno body wash which was recommended by my gyne but some can't tolerate that even. Very important also is the connection most of its have found between sugar and flare ups so if you can cut down on sugar you'd be found yourself a favour.

    There's tons of info on this site but start of with the basics as above and read up on the rest where you can introduce other things if you feel like. Good luck to you and welcome to the forum. It's helped most of us more than any gyne/dermatologist EVER has and also it's good to know you're not on your own with this awful condition. Let us know how you get on xx

  • j02359
    j02359 Kiss_n_Tell

    Posted

    Dear KnT, are you able to ask for a referral to a gynae or dermatologist who specialises in LS so that you are prescribed the clob etc?  Lots of good stuff from others above too.  Every best wish, J.

     

  • Kiss_n_Tell
    Kiss_n_Tell

    Posted

    Thanks for the info ladies.

    After realizing about the LS yesterday and then my bday today (55) starting not so great to spiral downward as the day went on, it's nice to see a little bit of light down the road.

    Thanks!

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