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Hello, I just joined this forum and after reading several threads I feel like I need to start my own. I am a 25 year old male and actually work at a fairly large trauma hospital in Texas. I have had headaches my whole life, some lasting up to a week or so but my mom always just said that “they run in the family and I’d grow out of them.” Well about 8 months ago I got a headache that has yet to go away. I get extremely dizzy and my headache gets very intense when I bend over, stand up out of bed,or get out of my car. My vision gets blurry as well but it only lasts for about 15 seconds and then subsides back to the regular dull headache. I can not pinpoint where my head hurts (my entire head hurts) and I can definitely feel my pulse when I lay down on my pillow. I get the chills and get nauseous randomly throughout the day. Sneezing or yawning spikes the headache up pretty bad. I get confused and have an overwhelming feeling of anxiety sometimes. When this happens I start crying for no reason and have trouble answering the simplest of questions. I cannot lift anything heavy without getting dizzy and making the headacheworse.
I have had a CT scan of my head as well as an MRI. The only thing the MRI showed was low lying cerebellar tonsils which were 3mm too low.
A neurosurgeon that I work with looked at the MRI and said that CSF flow looked normal and ruled out Chiari. I’ve had my optic nerves looked at as well and they were fine showing no signs of swelling or cranial hypertension. My blood pressure runs about 130/85 (don’t know why that matters but I’m giving you guys everything out of desperation). I’ve tried a variation of medication including blood pressure meds and anti seizure meds with no relief. My PCP is convinced it’s a Chiari but the Neurologist I’ve been referred to is booked out 7 months and I don’t even have an appointment a months after the federal. That being said, I’m going anywhere I can for answers.
I can’t complain too much after reading some of your stories, but my quality of life is definitely not what it was a year ago. I worry that it will only get worse and I have yet to find any answers! If anyone can tell me anything at all I would appreciate it.
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