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I am a 35 year old male.I was diagnosed with burkitts lymphoma +/- 5 years ago. I did 6 treatments of hyper cvad chemotheraphy. Thereafter things just slowly went backwards.. My speech deteriorated - I have very broken speech today - Initially we thought this was all and decided to live with it, but there is more, my social skills and self esteem also took a huge knock and is now virtualy zero.. I was a very efficient and professional individual, who had to forcibly give up a lot over the last few years and slowly been reduced to someone who hides from any social interaction.
I went for an MRI when my speech started deteriorating - while getting my last chemo.. And then a year later again - there was no difference. I have been to one hospital's neurology unit - they have done all the tests possible, but could not find anything - other than it not relating in any way to the cancer itself. I have been for speech theraphy, that did not help at all.
Here is a full list of my current symptoms:
Balance not the same.
Speech gone. - very hoarse and salivated.
Social interaction always awkward.
Very slow with almost anything.
My thought process is not what it used to be, but as you can see, I am still very capable of writing. I drive.
I have constantly turned to the internet and tried this & that - but not getting to the bottom of this.
My wife is expectant (we froze semen before the chemo started) with twins and I don't want to be a father like this..
If you have any idea what could have gone wrong please get in touch..
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