I need help sorting out an with an unconfirmed diagnosis

Posted , 3 users are following.

I am suffering from two different helth conditions, listed below, that cause me to have several socialy unaccetable symtoms, listed further below, I need a solution:

The first medical condition is proctitis which is having the lower rectum chronically inflamed which results in having all of the symptoms around the rectum. I have noticed that ingesting food containing sulphur, sulphur compounds or food that become sulphur in the body makes the rectum more inflamed, creates excessive foul smelling gas & burping and causes flatulence incontinence.

Two of the most effective ways of decreasing proctitis symptoms like inflammation and gas is by decreasing ingestion of anything containing or producing sulphur and by doing as little physically as possible.

NOTE: Although you will feel the symptoms decreasing it will not be enough to function under longer periods of time.

The second Medical condition is unbalanced gut flora with symptoms usually being centred around the stomach area which in my case means having chronic inflamed belly, stomach pain, excessive gas, excessive burping, stomach growling and being food sensitive towards all foods which means having diarrhea often.

The best of the two most effective ways of combating the symptoms of an unbalanced gut flora is through fecal transplant which can fully cure you and the second being through ingesting several doses of probiotic supplement throughout the day because a dose contains 20billion live culture and that only gives me about 3 symptom free hours.

NOTE: Probiotic supplements really do make you symptom free for a couple of hours and while there is a small improvement in proctitis symptoms, it doesn't really help much.

All the symtoms I am experiencing

1.Excessive gas

2.Excessive burping

3.Extremely intolerant to sulphur or any sulphur compound

4.Extreme food intolerances when all tests have come out negative for food allergies

5.Stomach growling

6.Pain in abdomen

7.Balloon belly

8.75% diarrhea and 25% normal poop

9.Sometimes pain in rectum when pooping, this happens once or twice a month

10.Sometimes little blood in toilet paper, this happens once or twice a month

11.Constant feeling of inflammation/irritation in the lower rectum

12.Constant feeling of rectum pushing as if it was trying to poop

13.Wanting to poop but unable to, feeling as if rectum can't for some reason

14.Mucus and liquid coming out of rectum, sometimes when pooping, but when physically active

15.Flatulence incontinence (not fecal incontinence)

16.Constant sinus inflammation, extremely low sense of smell

17.Short breaths, fog minded, low energy

18.Feeling tired, weak, irritated, sleepy, dizzy, Cold

How the specialist dr behaved followed by the examine and tests he perfomed:

?[/b]At the first appointment [/b]I began to tell the specialist dr all of my symptoms in detail, listed above, and how much suffering it had inflicted in my life and that I isolate myself from people because of it.

Hes response was that he virtually knew the diagnosis just from hearing my symptoms and that the treatment for it had a high success rate of suppressing symptoms to a non existing point.

Following that statement the specialist dr performed a physical examen, listed below, that focused on three things after which he said tested normal.

Lastly he told me that I needed to take some labtests, listed below, and gave me a paper slip to give the nurse at the labtests which I went and performed.

At the second appointment the specialist dr was angry over something because he was already standing in the hallway, outside his office, waiting for me with the labtest result in his hand and when I got there he quickly began telling me that I had tested negative on all tests.

He followed that up by saying there was nothing wrong with me and that stress was causing all my symptoms and that was basically it because when I started asking questions he responded by saying he had an important meeting and left.

Physical examen, listed below, which he said were normal after the examen

1.Prostate cancer

2.Sphincter muscle for damage och muscle pinch strength

3.x-ray or ultrasound

Labtests, listed below, for IBD, UC, Crohn's, Clostridium difficile, food allergy, yeast infections all of which came out negative

1.IgA - anti tTG negative

2.S-IgA shown in serum

3.Food allergy negative

4.Clostridium difficile negative

5.salmonella, shigella, campylobacter and yersinia negative

6.ASCA IgA och IgG negative

My own thoughts and questions

I spent years trying to find out which disease I had that was eating my life away by searching the internet for other diseases that shared as many symptoms as possible.It was hard and I ended up believing I had a couple of diseases instead

That was until this year when I finally stumbled upon proctitis which I immediately saw had 100% of the symptoms.

I understood that the specialist dr had come to the same conclusion after having read about the symptoms and about which tests are used for the diagnosis. What I don't understand is why the specialist dr changed his mind after seeing the labtest results.

QUESTIONS

?1.Do you think my symptoms are those of proctitis?

2.If not what do you think I have?

 

0 likes, 2 replies

2 Replies

  • Posted

    Hi psuferer

    I also had proctitis but this could be due to a number of reasons such as an infection, crohns and so on.  I wouldn't worry too much about proctitis.  Did you have a colonoscopy?  This would be the number 1 test to go for but usually this would only be performed if there's good reason to such as a high calprotecin level which is inflammation in the intestines or blood in your stools but having blood on the toilet paper would indicate something like piles or a tear.  There's many things it could be such as IBS which can mimic crohns.  I had loads of blood in my stools and been told it's 95% not crohns as my tests also came back negative.  I'm not sure If your worried about something like crohns but my consultant has told me to have a stool sample done "calprotecin test" every 6 months for a yr to ensure its not crohns.  If it's high then I need to have more tests but its more likely I had an infection.  That's something you should have done a stool sample also to rule out a bug or infection. Try have stool sample wen u have symptoms.   

  • Posted

    It could simply be ibs.  I don't think its proctitis.  If you've had a calprotecin done then its not crohns or anything like that.  Keep a food diary

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