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I need help! The Lichen is taking over my life!

Posted , 5 users are following.

Charlotte1954
Charlotte1954

I have had to have my vigina opened twice and the doctor said if it closes again I will have to have a much bigger surgery.  We'll I see him tomorrow and it has closed down again!  I have had a tooth pulled because of the lichen in my mouth. Never tithing hurts and itches!  He the doctor said instead of rebuilding the vigina he could let it close and I would no longer have one!  I don't know what to do and I feel as though I am drowning in this awful disease.  I can't take steroids because I am a diabetic.  I need some help!

0 likes, 4 replies

4 Replies

  • philomena_94480
    philomena_94480 Charlotte1954

    Posted

    My dear Charlotte, I really feel for you and wish I could help. I too have been suffering from this awful disease for years now and it won't go away. I pray you get some help soon.
    • Charlotte1954
      Charlotte1954 philomena_94480

      Posted

      Thank you sooo much for replying to my message!  I am just so tired of it all!  I now have to decide if I want the doctor to rebuild my vagina.  It sounds crazy but that is now what I am left to figure out.  I see my doctor today. I think I need to figure out with him how much this surgery could be too tough on my system.  I'm just so scared and don't know what to do.  Nothing helps and I just keep getting worse.  The doctors are now trying to decide if they need to strip my system of anti a notices, which is dangerous because if you catch anything it can be fatal.  I'm just tired of all this and wish I knew what I should do at this time.  Thanks so much for writing me!
    • philomena_94480
      philomena_94480 Charlotte1954

      Posted

      Charlotte, I really feel so much for you! Feel I so wish I could help you in any way! Feel so helpless!

      Guess you are just going to have to keep on at the doctors with every fear you have!

      Keep talking and asking!

      All I can do is think of you and pray for you.

  • tomsbestfriend
    tomsbestfriend Charlotte1954

    Posted

    Hello Charloote

    I really feel for you. You have the LS and OLP much worse than I have I think. But currently I am trying three things to try to tackle the reasons for multiple auto-immune diseases. You may wish to try them.

    Firstly I have really reduced my consumption of all Omega 6 Essential Fatty Acids (Palm Oil, Sunflower Oil, etc) and have increased my intake of oily fish, falx meal, green leaf vegetables. In addition I take 3 x 1000mg of fish oil every day. The reason for this is that Omega 3 EFA is the one responsible for anit-inflammatory actions in the body and Omega 6 is responsible for inflammation. Omega 6 is taken up preferentially to Omega 3. If you have lots of Omega 6 then however much you have of Omega 3 it is just excreted. A proper scientific study of this has just started at the university of Cairo (I think it is), in Egypt.

    Secondly I am trying the 3-day total fast (water and black tea/coffee only) on the first three days of every month for the next six months. The theory here is that your white blood cells, over time, get memory of things that are identified as bad for you and if they recognise any of these things then the body sends the white blood cells to attack whatever it has identified. This is how anti-bodies for disease you've had in the past are remembered. In auto-immune diseases the white blood cells have some wrong memories and think parts of your own body are a disease that has to be attacked. If you fast for 72 hours then towards the end of that fasting period the body uses up some of the white blood cells (preferentially any damaged ones) in mobilising your body's energy stores. Once you start eating again your bone marrow then manufactures new white blood cells to replace the ones used up. Hopefully the new white blood cells will not be damaged in the way used-up ones were and so the auto-immune reactions which cause LP, OLP and LS will subside. Again, there are scientific experiments about this being done in the US.

    Thirdly, I am trying Chinese Acupuncture to really reduce my stress levels. This is in case the auto-immune diseases have a stress trigger.

    These three actions are all designed to try to stop the auto-immune diseases that I have. In addition, of course, there are all the palliative treatments for the reflief of the painful symptoms, such as steroid creams, hydralauric acid for OLP, etc.

    All my best wishes to you and I hope you somehow come to terms with your condition.

    Jo

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