I need help with my condition please!
Posted , 5 users are following.
Hello everyone!
I am here because i desperately need an advice or opinion about my current condition.
I will try to explain this as best as i can because my symptoms are weird and complex and some of them are not really recent and i will point out that i experienced similar things 5 years ago(when it all started somehow).
I am male and 16 years old and it all started 5 years ago when i was straining myself in order for my face to be red (stupid reckless child game),i think i even lost consciousness and suddenly when i woke up from that state others were staring at me and i remember one guy said:what happened to him?! I was confused and scared,in that moment i could barely move my arm or my leg,it was like my motor functions were decreased drastically.
It took me about five minutes to recover and i was in some ultra-detached state with derealization before i recovered and everything came back to normal.
I never talked to anyone about that,it happened and passed so i basically forgot that.
A year later when i was diving in the pool similar thing happened,only this time i could walk and do everything normally but i felt weird feeling in my head along with derealization.Since i was younger and it lasted longer i was frightened so i told my parents about it and i went into the hospital.They did a lot of tests,starting from basic blood test to EEG and MRI scan.Everything was perfectly fine.This feeling was present 2-3 days and it was gone.
It is interesting that i had absolutely no symptoms or troubles with any of these things 3 years after my time in hospital.
At the end of last year i started to experience some unusual symptoms,i was doing wrestling with my friend and when i got really really tired similar thing happened to me like the first time,i didn't lose consciousness but i felt extremely dizzy so i had to lay down for 5-10 minutes in order to recover.Along with that my vision was getting worse and i had some sort of weird chronic fatigue.I didn't say anything to anyone and i ignored all of these things but it gave me mild stress and fear which i was holding inside.A couple of months ago(it was February) i fell into mild depression because of these things and that feeling inside my head returned along with brain fog and derealization.Again i told everyone about this and i did some basic tests like blood test(it was more than perfect(iron in my blood was on maximum),i checked thyroid gland(no problems),i did ultrasound of liver and internal organs(no problems),in the end i went to the doctor who was famous for his good diagnoses and he said to me:you are a healthy boy and your symptoms appear due to puberty and flaring of the nervous system along with some bad habits in life(being on my phone too much,staying awake too late etc..).He said it will pass just be patient and he gave me B complex vitamins.Some time after that i felt better and i could do activities normally without problems.But two months ago i experienced similar symptoms and now they are still here,at first they were not so strong that i couldn't lead normal activities but now they are causing a lot of problems to me,i will mention all of them now:headaches(headaches were always present in history but now they are a little bit more frequent),brain fog and derealization(every time slightly different but more-less the same),strange feeling in head and painless pressure,ear ringing sometimes(i went to a doctor for this and everything is fine besides i don't know if that can be related and maybe this is normal),very unpleasant form of dizziness when i'm moving my head faster(like some strong sensation in my head),when i go to the cinema or a night club my head pressure appears and my eyes become red(not always).All of these symptoms mixed together are affecting my ability to live a normal life drastically and i'm worried about what it could be.A week ago i went to a neurologist and said all of these things,she said to me that it could be do to various things and some other stuff like puberty and bad habits.Now i'm waiting for EEG and Color Doppler and everyone keep saying me that it's probably nothing serious but the symptoms are weird and wide and i feel like it all originates in my head.I can't not be worried about this.I also have to mention that i am wearing glasses right now and i didn't before(but it is probably genetic astigmatism and it don't have to be related).
If you know anything about this or what could it be,i would like to hear an advice or opinion,please know that it's not easy for me and that it's hard for me not to worry.
I've posted this in this group and also in some others,i seriously need help!
Thanks for reading.
0 likes, 16 replies
terrie27149 josip_39025
Posted
Try not 2 stress..stress causes my head to have wave like motions, brain zaps, lightheaded and dizziness, tired, pressure behind eyes and temples...so...stress less..
josip_39025 terrie27149
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Well i am currently waiting for Doppler ultrasound of blood vessels in my head and neck,as well as another EEG.This could be due to various things including that,my biggest mistake is that i always assume the worst and that makes me feel really scared and worried.But everyone around me(including you)is telling me that i worry too much and they are really right!One thing i forgot to mention is milder dizziness that happens sometimes,it's some sort of that dizziness i get when i shake my head(like a sensation that strikes my brain) but just not so strong.As i said this may be due to various issues,thank you for advice and opinion i'll try not to worry this much
issybells josip_39025
Posted
I have the same symptoms they started at 18 I'm 20 now but I'm female. People say it's Anxiety but honestly I don't believe it's JUST anxiety because it doesn't feel like just stress and one of my doctor's even said that! He sent me off for tests but I'm still waiting for appointments. One person said BPPV , another Vestibular Migraine. It's okay to be worried it's not easy to deal with the symptoms just don't let people brush it off so easily because it's a very VERY hard thing to deal with. I have it 24/7 and my family still say I'm overdramatic. I hurt my ankle really bad because I got very dizzy and lightheaded I fell and bruised all my arm and ankle. I hope you find an answer just know you aren't alone in this. I will definitely let you know what my tests say too!!!!
josip_39025 issybells
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I have just checked your posts and first of all i'm sorry you've been experiencing the same horrific scenario like me.Being in this condition is nasty and very scary because you feel like you're living your last days with Glioblastoma Multiforme. And i have to say that in some way i'm glad i'm not alone in this.I will soon have EEG and Doppler ultrasound of blood vessels in my head and in my neck.This could be due to the affected blood vessels and due to a lot of other things and neurological disorders.I know how worried you are because i feel the same way although i know we shouldn't worry this much but it's really hard and scary being in this condition.I will let you know about my tests too and as hard as it sounds we have to find a way to worry less about this.I would like to talk to you about this because it seems to me we're experiencing very very similar symptoms.
issybells josip_39025
Posted
Yeah sure I don't mind talking to you about it. It's good because none around me understands lol, Which yes I hate but I dont blame them because I don't even understand it myself half the time it's so hard to describe it. I'm starting to think it might have something to do with the neck too, So remember to get your neck checked out and your thyroid!. Message me anytime on here if you like if you can? I don't know if you can message on here lol. If not we can find another way
. It's good to have support. (And yes I understand how it feels to feel like you are dying daily) 😓.
Jon8181 josip_39025
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Young man, first of all you are doing the right thing by letting your parents aware of your symptoms, continue doing that don't ever stop and DON'T ALLOW ANYONE TO TELL YOU HOW OR HOW NOT TO FEEL. As far as your symptoms it's difficult to say. I will offer this advice, just because the doctor or Neurologist says something they can sometimes be wrong. I've seen 5 Neurologists before I was able to get a correct diagnosis and even then my wife and I just found out last week some pretty bad news. The Neurologist we saw last March 2017 works at one of the top Neurological Health Facilities in our State. I had been experiencing some neurological symptoms that I thought were related to some of my past disorders. As time went on and my symptoms began to get worse and happening more often I finally shared with my wife what was happening. We pulled out that Neurologists old paperwork he gave us last year in March and we read it, but this time extremely carefully and learned a couple things. Like you for a long time I had been experiencing dizziness, balance issues and falling down since 2014 but they would only happen once in a while. As time went on those symptoms became worse and were happening more often. I complained to everyone, including that Neurologist. They did and MRI and it was normal. But my symptoms continued to get worse. By the time I saw that Neurologist the symptoms were happening everyday 24/7 but by then I also started having headaches to. That Neurologist performed a bunch of tests and diagnosed me with my having "Gait Wide-Based Ataxia" but he never mentioned anything to me or my wife so we didn't know until last week. Well if you do a Google search for what he diagnosed me with it says my walking resembles someone who has Cerebellar disease and if you look up the symptoms for Cerebellar disease, some of them are, dizziness, balance issues, falling down and headaches. Well isn't that a coincidence. Now I'm not saying I have Cerebellar disease but my symptoms match those symptoms wouldn't you agree? Why didn't they ever test me for that? That's all I'm saying. Continue to tell anyone who will listen about your symptoms especially when it's neurological, thats nothing to play with. You could have a small blocked blood vessel or a Microbleeds, it could be a number of things. There's a disease called CSVD which I have. It stands for cerebral small vessel disease. You must have had certain things like a Lacunar Stroke or other things in the brain for them to find that you have this disease and they can only find it with an MRI brain scan with I think VIVO software from China to find this disease. So hang in there and keep telling everyone.
josip_39025 Jon8181
Posted
Thank you for your advice!I know that neurologists can be wrong and i don't actually trust them easily.4 years ago when i was in hospital as i mentioned above i did almost all of the tests including MRI scan and when they couldn't find anything they sent me to a psychiatrist(insane i know,since the problem is physical not psychical).
After i told her just a part of my story she already gave me antidepressants as well as some other pills,we were all shocked and surprised.And after consulting with my parents,friends and family i decided not to take them.So this is basically how it works here in my country:When they are unable to detect an issue with an MRI,CT,EEG and other scans and tests they send you to a psychiatrist claiming that the problem is psychical not physical.And when you go in to the hospital they are not interested in your problem at all so they are usually rude and unpleasant in order to force a frustrated patient to go to their private clinics.So why is this?Well it's simple..when you go private you pay them,when you go to the hospital you don't..the difference in their behavior is huge.Anyhow,the problem is complicated and needs to be researched more carefully(i just hope it's nothing serious of life-threatening).My stress and anxiety are 95% due to me not knowing what this is and constantly thinking about what could it be and those 5% are due to symptoms themselves.Although i really think i'm panicking too much and i'm trying to worry less.Your story is interesting and shows that neurologists are always so reliable.I have checked the issues you mentioned here as well as some others and i really can't know but i do find similarities with my symptoms in a lot of them.Could be Vestibular Migraine..could be affected blood vessels,chiari malformation and tons of other things.I am currently waiting for EEG and Doppler ultrasound and i'm trying to be as calm as possible.Thank you for writing this and encouraging me,it means a lot!
josip_39025
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"and shows that neurologists are *not* always so reliable"
caroline70988 josip_39025
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caroline70988 josip_39025
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Well your suppose to be sweet sixteen did they check you r ears ? Verdigo ? And you need to stay focus on not going out drinking do the fine things at 16 do you have adhd ? Just question I know being 16 growing up and it’s not easy now adays being young . Have to say your. Spelling is great , comprehension. Think ask about it try focus on having fun putting your life on growing . This your time you probably little depressed from worrying , some axiety due to situations.Try relax get more sleep stay away from stressful things also my grand kids on Cell to much , computer try if you can’t sleep tell your mom , dad melatonin it’s all natural for you to get more sleep . Also ask test you out for vertigo hugs hun . Let us know how your doing plz.
josip_39025 caroline70988
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Thank you very much Caroline,i appreciate it!I'm not in a very good condition now because of my wide symptoms that are affecting my life but still i am trying to remain as positive and calm as possible
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I used to enjoy reading and watching intellectual philosophical stuff and now i don't know if i even have the will to harness the complicated thought or any thought at all,i feel stuck in my brain fog like a prisoner in his own mind.It's not easy for me at all but still i'm doing my best to reduce stress and anxiety.About drinking,going out and that..i am not really that type of a person.Although i am 16 i don't enjoy stuff like that and i prefer nicer and more peaceful things.I have a few good friends and a best friend and that's enough to me i don't need anything more and nor do i enjoy in that.I am balancing everything and trying to maintain equilibrium in my everyday life.Thank you for everything and i will let you know how i'm doing
caroline70988 josip_39025
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josip_39025 caroline70988
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caroline70988 josip_39025
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😊😊 I am at emergency right now my chest sore again . Basically I had phnamonia and my lung collapsed. Was hospitalized 2 weeks sent home so had same issue two months ago caught it on time they gave me antibiotics , steroids sent home . But went for ultra sound on my heart so on Thursday heart doctor said they would call me basically 3 days ago pain happened again and it’s worse to day when I move certain ways or breath it hurts . I had gbs when sent home as I said year later from hospital my right lung I had blood clots so sitting here by my self nervously . It hurts lots so did the right thing coming in . So dam busy here but got be patient.
josip_39025 caroline70988
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caroline70988 josip_39025
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