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I need some advice

Posted , 2 users are following.

jill9797
jill9797

Thank you for welcoming me into your group. I joined because I'm dating a man who suffers from haemochromatosis. I care so much for him, so I'm learning about this side of him. I truly want to support him. I've seen how it affects him in certain ways, and I wish there was more I could do. How do I support him the most? What is needed the most, verbally, physically, when I want to support him as much as possible? Thank you so much, everyone.

0 likes, 2 replies

2 Replies

  • sheryl37154
    sheryl37154 jill9797

    Posted

    As long as he keeps up his treatment he should not have too many problems unless he was diagnosed late and had problems before he started venesections.  Also education - learn about the disorder, join/contact your country's haemochromatosis organisation, talk to them and have them send out information to him.

    Has he been de-ironed, i.e. ferritin <50, and now on maintenance program of once every three months, or is he still in early stages of venesections?  It all makes a difference.

     

    • jill9797
      jill9797 sheryl37154

      Posted

      A lot of these things I'm going to have to find out, but the lack of knowledge is mainly on my end, not on his. He's been dealing with this for years. I just want to start learning about it so I don't have to ask him to talk so much about his own illness, even though we still do have talks about it. I truly care for him and I want to support him. I'm going to look into the things you mentioned, for my own informed sake. Thank you so much for answering me.

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