i need some answers, cluster headaches
Posted , 4 users are following.
hello everyone.
i just registered because i am trying to do some research. i am sorry if this is the completely wrong place to post this and if this is not allowed, but i feel i need some answers.
four weeks ago i got an emergency appointment with my doctor because i had had a red eye for a week and i was very sensitive to light and looking at anything bright would send a shooting pain through my eye/head. moving my eye hurt, and i occasionally would get headaches on the right side of my head.
the doctor was a question mark after he tested everything neurological and he sent me straight up to the emergency room where they admitted me, took more neurological tests, blood tests, urine/stool samples and eventually a CAT scan. that same night i needed to have a spinal tap and all these tests were completely fine.
i stayed overnight and i got put on oxygen in the morning when i had an "attack", which did not help. then the pain just went away, and they diagnosed me with cluster headaches.
i luckily had my friend with me and she commented on the fact that my eye had been constantly red throughout the week, when as i understand it, the redness should go away between attacks if it is in fact cluster headaches. i then got checked by an eye doctor and he looked at it and said that i had iridocyclitis.
they then said there were some inconsistencies with my diagnoses, and said that there was a good chance i had both cluster headaches and iridocyclitis. i got sent home with eye drops and an eye cream that i was put on for three weeks. the pain disappeared the same night i started those, except for small pains in and around my eye occasionally.
long story short - i got diagnosed with cluster headaches and then iridocyclitis and then the possibility of having both. pain went away.
last night i had the same exact pain again, and my eye turned slightly red, just as before. i talked to my doctor who sent me to the eye doctor, who confirmed that there was no sign of the iridocyclitis anymore, and that i then most likely have cluster headaches.
my questions are, as i understand it the pain is unbearable during an attack if it is in fact cluster headaches? i have looked around and tried finding stuff on the internet and it seems a million times worse than what i have. my eye/sometimes head just hurts when i look at light, and i occasionally get headaches but those are all over, and not localized to one side of the head. i also, like i said, was put on oxygen in the hospital but that had little to no effect on me. granted, cluster headaches can be "mild", but i would say the spinal tap i had was more painful than my "attacks". i should also say that i have no visual problems during these "attacks".
i am just at a loss and do not know whether i have it or not. if anyone could shed just a little bit of light and share some experiences i would be so so so grateful!
0 likes, 7 replies
wendy80842 l13891
Posted
Good luck.
l13891 wendy80842
Posted
sunct7 l13891
Posted
l13891 sunct7
Posted
i've suspected that i have migraines for years now but it has never been pain like this. my doctor shrugged it off and told me they're probably just tension headaches.
i'm on day two of this "attack" now, and my eye is still red. i'm gonna call my doctor tomorrow and see if she wants to refer me to a neurologist.
sunct7 l13891
Posted
l13891
Posted
i'm so confused, i don't know whether i have a regular old eye infection or cluster headaches or none of them, and i don't know why something that's supposed to help would make it worse, and i don't know why a kind of eye infection would have the same symptoms as what i've had before i even got it. this is so frustrating.
sorry to ramble on, if you bothered reading all of this, thank you.
sunct7 l13891
Posted