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It was suggested to me by PMR/PRO that I look on this site for some help. In April while I was on a cruise I woke one morning and I could not lift my right arm. Five days later I could not lift my left arm then my buttocks were so sore and I could not bend down and could not get out of bed with out the help of my husband. When I came back I had blood tests done and my GP said I had PMR. She started me on 20mg Prednisolone. I seemed not to react very well to the steroids so after a week she told me to cut down to 15. Although most of the pains went away at 20 when I went to 15 I felt I could not cope. People on the PMR site told me I should not have come down so quickly. I am up to 20 again but still feel awful.
Four years ago I had problems with sores in my mouth...not thrush. After investigations I was told it was auto immune and that I also was Vit B12 and Zinc deficient. I get injections for B12 and take zinc supplements twice a day. Two years ago I had invetigations for pains in my stomach. Gastritis, again auto immune. I was given Omeprozole but found it did not help.
Since this diagnosis of PMR I have pains in my gut almost all of the time. It wakes me up in the middle of the night... I don,t sleep very much and am exhausted all the time. My hands are strange. Tingly and numb. I keep dropping things. Headaches are not so bad now. My blood pressure is sky high... I take Losarten. The thing is I feel I should be feeling a bit better on 20mg steroids.
My GP has referred me to a rheumatologist. I live in Yorkshire, My preferred hospital has no appointments and the ones I can get into are end of August and beginning of September. I will go privately if I can get in touch with my GP to arrange it.
Odd thing when I woke up yesterday I had pain in my calves
Sorry this so rambling but I am wondering if this could be something else
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