I need some to create to my girlfriend thinks I'm lying about my pain

Posted , 5 users are following.

Hi everyone.I've never been on something like this before.I need to be able to talk about what I am experiencing who feel it themselves My girl friend doesn't getit.Lately for almost 5 months have I been sore muscles. Mainly my shoulders. It quickly progressed to my neck joints breasts side feel like I move stiff roboticAlmostSome daysare awful.Its literally pain from head and neck to abdomen arms knees and feet. My legs this week stated sweeping bad and turning reddish purple. I've been to many places no one had helped. I think it best fits fibro myalgia. I have to know did any one else get very confused at times and or crazy mood changes. What can I do to stop the pain a little bit. And does stress really make it worse. Cause if it does I know why its got this bad I Hurst head to toe my shoulder knees angles and emboss and wrist pop when I love them. Please help m . I feel so alone no one understands how hard this i . They think cause you are tough and fight through it you are not in pain. IMG. Sorry again for rambling. That you for your time if you do decide to read it. I appreciate it

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  • Posted

    Hi Pnikki (hope its ok to shorten your name) you most certainly are not alone. Unfortunately all our pain doesnt show like having a broken limb would. My pain starts in my neck (where i do have some other issues as well), my shoulders, my shoulder blades and inbetween them, both my elbows, both wrists, fingers, hips and lower back, knees, ankles and opposite side. Other parts of me can hurt at any time. My skin can feel sensitive and i dont like it to be touched. Stress definately makes pain worse. I have know sexual desire because of pain killers. I am very emotional even though i take anti depressants. My hips and back are the worst of everything, maybe because they are the largest area, but this pain will take me off my feet and all i can do is takes my meds and lay in bed.  This can happen every week. The trouble is i have one of my sons Luke living with me and my daughter Sophie with her son Tommy my gorgeous grandson. When i lay in bed wondering why im alive and what my future holds i dont hear any hoovering or washing machines going, dont hear a lot of anything really except Tommy. When i can finally make it out of bed in a very weak state i start to try and clean all the dirty areas that my eyes allow me to see. Trouble is the minute i sweep or use a hoover the pain in my hips and back (which never completely leaves me) become excruciating. I know im addicted to pain killers because ive been on them for years because of my back pain but they had no idea about fibromyalagi. I am on pregablin and tramadol, diazapan, sleeping tablets and anti depressants. Even if i took required dose of each on at the same time it would not get rid of my pain. 24/7 in pain for years and not knowing if it would ever go away. If i didnt have an understanding partner then i would have to get rid. Tell her that if you are having a day in bed you are not wasting a day you are using that day to try and get better. I hope this helps in some way although im not sure how lol. Nicky.
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  • Posted

    Hello, I had the same problem after being diagnosed with Fabriomyalgia amongst other things, so what I did was downloaded a good amount of information from Internet about the effects of this illness, I then printed them off, gave copies to my family to read and because they love me they read up on it, it's made an incredible difference to both them and I. As they now know that I'm not being lazy or distant or depressed for no reason, it stopped me feeling so guilty when I get really bad days and can't do much. Now, they help me as much as they can. Try it, and hopefully it will work for you also. Good luck xx

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    • Posted

      The sad thing is my gt knows all about this now and she still doest care and thinks I'm a hypochondria . And kept me up all night yelling and being mean while saying I can't have this much stress and wanted go be alone. I feel so alome

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  • Posted

    So sorry to hear how you are feeling. Have you had a diagnosis of fibromyalgia?

    I would recommend that you get s blood test for vitamin D as deficiency can also cause a lot of the symptoms too. I was diagnosed with very low levels at 14 when it should be 70 or more. Then diagnosis came for fibromyalgia on top earlier this year.

    I can relate to all that you say as can other fibro warriors.

    Show your girlfriend the replies you have received, hopefully she will be more understanding xx Good luck 😊

    Ps. The leg problem sounds like something different that needs treatment.

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    • Posted

      I just found out I have it. I have been trying to figure it out for a few year . Doctor after doctor no one helped. I feel like I'm just not myself anymore.like I know I'm me but my personality has completely changed. Does anyone get angry easy not just sad or anxious ?

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