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I Need Your Help

Posted , 4 users are following.

diagnosisisalie
diagnosisisalie

SO I just went through a horrible move where yes I pushed myself daily. Um those of you that know what a mother will do to lessen things on their sons , that is me. They might be 17 and 18 , but hey they are my babies. I got through the move thankfully I have a walker , it helped. But now it's been about a week and i hurt everywhere , including my eyelashes. I have noticed that my gums stick to my teeth, man it makes me sound funny and it is annoying. Now I have stood up after waking up and had loss of my urine. In the last 5 days ,,which today isn't over I have fallen 4 of the 5 days AND came close a few other times. I am noticing that my eyesight is going. When holding my phone , I drop it about 2 minutes after holding, now my phone is pratically broke. WHen I called my primary she said to go to the ER ( around here it is 4-1`7 hour wait to be seen ) . I called my RA and after he asked me to wait he then said that he would call in cymbalta , to take 30 mg in the morning and then the 60 at night that I already took. I am also up to 150 mg of Lyrica 3 times a day, oh and tramadol doctor says 2 every 4 hours . I stopped it as I didn't see it helping and well I don't like taking pills to damage my liver . Although he said it was fine, doesn't work I stop them. Now I am trying to get into a pain management clinic as I requested  a refferral. Has anyone experience any of this? I have to become functionable by Janurary , as I already missed this past semester of my final internship to getting my BA and working in Special Needs . Please Help Me .

0 likes, 8 replies

8 Replies

  • Bee70
    Bee70 diagnosisisalie

    Posted

    Hi Diagnosisisalie

    Wow you have been through a lot.  Have you read my post I posted a few days ago about my expereince with Ayurveda Herbal remedies.  It's worth you looking into this method of treatment.  Google Ayurveda and she the benefits it can give.  It's not an easy fix but it's not harsh like other meds.  Also try CBT (Cognitive Behaviour Therapy) with the mindfulness of the thought process.

    Hope you gey the answers you need soon.  Sending you big gentle hugs and take care wink xx

    • diagnosisisalie
      diagnosisisalie Bee70

      Posted

      Thank You, Bee70. I have had several pychoogy courses and have used the cognitive behaviour therapy teciques with reachabe goal. I think that it is a great way of accomplihing life struggles and give the support that is needed at times.
  • mineautoo
    mineautoo diagnosisisalie

    Posted

    Lyrica caused me to have all those symptoms. I am 99% sure it's the Lyrica that is causing it. Also do some research on Cymbalta, especially Cymbalta Discontinuation Syndrome.

    Gentle hugs.

    • diagnosisisalie
      diagnosisisalie mineautoo

      Posted

       I am thankful for both yrica a Cymbalta for those it helps. Bit for me it is horrible and I want both done.
  • bronwyn97278
    bronwyn97278 diagnosisisalie

    Posted

    Hi diagnosisisalie;  yes perhaps you could have a Complete overhaul of meds, as I found that both Lyrica and Cymbalta did nothing for me (I know that they are the "recommended" drugs for Fibro), but to no avail..............have you trialled Amitriptyliine/.Gabapentin....these 2 meds with some SL Oxycontin may be more help in pain=relief????....how you are going to cope with your Internship is worrying me, as you are certainly in a bad way......the thought of me trying to do same, would not be an option......I know/understand that we "don't like the thought of this Fibro beating us", and have also tried/succeeded in doing further study, hoping to be able to work from home, but still became too much for my body (the Un-predictability of our bodies is what lets us down....can't tell from one day to the next how we are going to get on......one day of coping puts us backwards for next 3+ days).......also from what I, and others have said re Pain Clinics, have been a total waste of time......to me I spent an entire week being told to practice what I had already been practicing, and then had the rebound effect...........I have always found that my Rhuemy has been my most supportive, with the latest knowledge (albeit as I said, not always correct for me), but does know what meds are available to trial and find what works for you...................do you have regular physio/massages to help your tired/sore muscles?   and have you started taking any Magnesium tablets, as I, and others, do feel that these play a big part with our muscles?......As for your concern re liver function while on meds, have you been having regular bloods done for your Liver Function.....( I have been taking my meds for nearly 13 years, with 6 -12 monthly LFT's done, and No change at all)...............good luck...............Bron
    • diagnosisisalie
      diagnosisisalie bronwyn97278

      Posted

      Thank you so much bronwy9727. I wish to God that my RA would ty something anthin else. My lat visit he explained that  had Fibro severly. He jus keeps uppig the sages or the time on the doses. I feel as though he res but as if he has a biook that says this is treatment and thet is it. We are all different, I made a comment  to the RA that my primary was doing a LUPUStest and the RA ;laughed saying1 in 5000 have lupua and the primary should have more sense than that.

      I think at if I was given the right medicine ,my professor will work with me some, I also requested a teacher friend of mine , but I might not  lucky enough . It is only for 12 weeks and 5 days a week . Prayers and strengnth , my birds bring me peace  joy. Being wacky helps too.

      At this point Iam just checking the pain clinic out, I am also checking if my insurance will cover hololistic care. I jus can ot keep having my husband mad a me for hurting and being 'dugged with Lyrica"  I guess it is my eyes he says drives him nuts. I never tried the Magnesum talets thanks I will look for them tonight

    • bronwyn97278
      bronwyn97278 diagnosisisalie

      Posted

      Morning diagnosisisalie;  why is your husband "mad at you"?.....what do you mean by "your eyes drive him nuts"?......is it that he can see the pain expressed in your eyes?..and is worried re you?....does he not understand Fibro, and that it is Not your fault that you contracted this horrible condition?   None of us would want to have this, and we ALL would love to be able to get on with our lives, work, be pain-free..............and to do this, we do need all the support that we can get, whether it be from medical professionals or our families....this I know can be hard for them to understand, but has he tried reading all information that you can find for him to understand what is happening to you............I too, know, that this is not always the answer/s as we all say, because we don't walk around with a plaster on, or a huge dressing covering some part of our body, they cannot grasp that it is internal (and if a dr said "it's cancer"...this they too understand, as it is common....but as Fibro is something that even some of the medical profession do not understand/know much about, it is hard to comprehend, unless it is us, ourselves, who are feeling these pains, and have been through all of the cycles of "thinking that It is in,our heads/minds".......etc etc etc........but hang in there, and find some literature, that your husband, and yourself may learn from (I have found a Lot on different sites from the web).....thinking of you............Bron
    • diagnosisisalie
      diagnosisisalie bronwyn97278

      Posted

      I guess the Lyrica make my eyes look stone when I get tired. NO, he tries to understand but he does so much. He says he has read some about it.Thank you for all the kind words.
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