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  3. Polymyalgia Rheumatica and GCA

I need your help again !

Posted , 7 users are following.

Royall
Royall

Morning everyone . On the 12th January I went down from 12.5 to 10 and I have been absolutely fine until yesterday morning when I woke with a little pain in one of my legs but not the other one ( polymyalgia is normally on both sides ) then this morning I woke with a pain in the back of my neck right in the centre I used to have similar pain when I was first diagnosed with polymyalgia. But there is no stiffness ,so has anything similar happened to anyone els, and unsure what to do. Thank you Xx

1 like, 7 replies

7 Replies

  • Silver49
    Silver49 Royall

    Posted

    It was about the only time I had a flare.....going from 12.5 to 10. I went back up to 12.5 for a week or so and then went to 11mg which worked for me. The 2.5 was too big a drop. I hope you can get on top of the flare quickly.
  • rocketman42
    rocketman42 Royall

    Posted

    I seem to hit that same wall each time I try to get to around 10 mg.

    Start over at the last effective dose and then, after it is under control, try tapering again in smaller increments.

    Good luck.

    • EileenH
      EileenH rocketman42

      Posted

      That's your body telling you you are the right place - when you get to 1/2mg above, stop there for 2 or 3 months. Then try again. It is amazing what a difference that can make, not allowing a flare to start at all.

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