11 Replies

  • Posted

    Most likely a UTI infection ........but can be blood from bladder and serious.........Have you been treated for PCA? or had procedures done on your prostate?

    Hematuria in urine usually requires both CT scan and cystoscopy .......urine analysis , nmp22 urine test which your urologist can do in the office...

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  • Posted

    Go immediately to your urologist! I had blood in my urine just one day. When I told my urologist at my annual visit 6 months later he went through the ceiling. His suspicions were confirmed via test and I had a cancerous tumor in by bladder. Luckily it was the non-invasive type and was surgically removed. I then underwent immunotherapy (called BCG) and two years later I'm still tumor free.

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  • Posted

    Glad to hear they got the tumor Lee........I am on constant watch and being screened continuously due to radiation cystitis and gross hematuria with clots.......in an out of pain and very tough to get medical support as there is no standard treatment ......

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    • Posted

      CLJim, that really sucks. The standard follow-up after BCG treatment is quarterly cystoscopies for 2 years! I am an expert at having tubes stuck up my wiener! Luckily it's never been painful (uncomfortable but not painful) and I've never gotten a UTI because they always dose me with Cipro right before the procedure.

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    • Posted

      Lee...I am on Cipro right now waiting lab test results..Dr at UCLA tells me I am his only patient treated with HDR Brachy for PC that has this condition of Radiation Cystitis/Gross Hematuria.....He keeps telling me no more cystoscopies as I am fried inside and subject to easy damage ......unfortunately the symptoms are same as BC , pain on urination , urgency and blood in urine.....taking NPM22 urine test, Urine Analysis and cytology every 60-90 days . Had cystoscopy in July, bled for 3 days and laid on the floor in pain for 3 weeks. I constantly flush with water all day long thus continuously urinating at night......where I run into problems is when water runs out and blood and clots get heavy like cleaning out the bottom of barrel, fear ducts get plugged . I read that approx 14% of radiation patients develop Radiation Cystitis .....it comes in varying degrees and can be life threatening ....there is an actual Radiation Cystitis Foundation .....Hyper Baric Oxygen Therapy seems to offer the most successful treatment , If plugged up can lead to sepsis. They go in wash the bladder and pull out clots if necessary . Will push for annual MRI.

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  • Posted

    In the first place go see your family doctor and if he/she cannot explain it, then get referred to a urologist.

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    • Posted

      go see your family doctor and if he/she cannot explain it, then get referred to a urologist.

      I will respectfully disagree with this. I told my family doctor about my situation during a routine physical and he just said to mention it to my urologist next time you see him. My urologist's reactions was "you should have called me right away." Visible blood in urine (gross hematuria) is not normal and should be diagnosed by a specialist.

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    • Posted

      The first thing that strikes me is that doctors, eg a family doctor, go by what they have seen in clinical practice. Clearly the hematuria the family doc has seen was not gross hematuria and he acted accordingly.

      You are right. With gross hematuria must like acute (anything), a specialist is the person to see, but often a referral is needed which mean one must see the family doctor to obtain the referral. My point is to chat with the family doc when asking for the referral and not just take the referral without even bringing the matter to his attention.

      Also may I suggest that BEFORE you see the family doc, make an appointment to see the urologist.

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