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I pray it does work for you

Posted , 3 users are following.

kathy75678
kathy75678

Nobody should have to live there life with that pain. I noticed most people call it facial shocks. To me it was like a lightening bolt going through my ear and down my chin. It hurt all my teeth, chin, & lips. So glad to wake up without it but I also worry that it will come back. Kathy

1 like, 3 replies

3 Replies

  • susan33651
    susan33651 kathy75678

    Posted

    Hi,

    Lots of TN sufferers get the shocks and some get shocks and a variety of stabs of pain as do I. They vary in intensity and sometimes it's just the one or two, but other times it's unremitting relentless agony for hours and hours. I have Bilateral TN affecting all three branches of the nerve on both sides, and sometimes all three branches, on the left usually, experience pain in rapid succession. On the odd occasion one side stops for a while but then the other side starts up, it is hellish. During these monster attacks (not my phrase but I stole it as it is so apt!) I can literally do nothing. 

    The general consensus is that the lower branch is less painful than the middle one, and the middle one is less painful than the uppermost one. I can vouch for that. When it strikes my eye I become a quivering wreck clock watching for when I can take some drugs! I never thought I would ever be that person. But......... it seems I am.

    No matter the level of pain it is vital to stay positive. All the very best in your struggles with this hideous condition.

    • kathy75678
      kathy75678 susan33651

      Posted

      Have you had mvd surgery or gamma knife? I wish you success with whichever method you have. It is so heartbreaking to hear about anyone suffering with this pain. People who do not have this do not have any idea how awfull it is. I pray you get some relief. Kathy
    • susan33651
      susan33651 kathy75678

      Posted

      No surgery yet as scans not conclusive, and surgery would be problematic in the event that TN proves to related to the autoimmune disease. So persevering with drugs at present. Currently have alternating left side then right side bouts of pain, been like this for almost two days now, fortunately no shocks so far.

      I have to be careful about increasing the drugs as I am on two which can affect liver function (sad face!). By the way..... relying heavily on presumptive text (as I call it!).

      X

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