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i pray none of you have to walk this longest of roads

Posted , 9 users are following.

sugarman
sugarman

1996 i had my first THR left side @ age 19 from seveeeere RA, 1998 i had a periacetabular ostiotomy w a 9 screw and plate addition to right side, that surgery i didnt get enough anesthetic and was aware and awake most of surgery and recall them sawing half my pelvis off and drilling screws into the bone. 15years i have managed only sleeping 2 hrs a night due to  horrible nerve damage, shooting electrical voltage thru the metal hip down my leg up to my finger tips. and when i say shooting electrical voltage, when it happens its like being tazered!  every muscle in my body locks up like a steal beam. sometimes i can walk a mile and it doesnt happen sometimes i can walk a half blocks and it happens, sometimes very violently, resulting in me looking like i have tourettes, sometimes karate choping or kicking my wife out of bed, ive put holes in the walls from sudden spasms. its restless leg/body times 1000. 

1 like, 7 replies

7 Replies

  • erika61265
    erika61265 sugarman

    Posted

    Wow!!! So sorry you are going through this, I can't even imagine. Anything they can do to correct this?
  • Malloo
    Malloo sugarman

    Posted

    Gosh you poor soul. Life deals out some pretty tough challenges. Keep on fighting honey - what else can you do? 
  • hope4cure
    hope4cure sugarman

    Posted

    The surgery was years ago. Unfortunately the surgery went wrong.

    today surgeons have advanced methods for hip surgery. Have you seen a surgeon who specializes in hip dysplasia recently. I hope there is a way for this to be repaired. I can't imagine the daily suffering u endure. 

    I have been thru 3 THR 1 was recalled due to MOM. Revision is not a easy surgery any way u look at it. I will hope that there is a way for you to find a better way to find help, recovery and sleep. I don't sleep well since the revision as they had so much damage from the old MOM components.

    i hope you find some peace and relief soon. Don't give up be insistent that there was simply errors made and neglence by the surgeon and anesthesiologist and perhaps it's time to seek legal council. I'm currently in a joint law suit ( pardon the pun ) for many of us who have suffered from these recalled implants. 

    So or sorry and I will keep you in my prayers.

    peace & heeling.

    HOPE

  • bonnie37273
    bonnie37273 sugarman

    Posted

    I had hip dysplasia when I was 7 for right hip with 4 pins and 8 yrs old for left hip with 5 pins. I have been in pain for my whole life I had went to see a ortho md in my 20's and he refused to do anything so again I went to another ortho in my 30's and same thing it took me to the age of 49 and bearly able to walk to finally finding a dr who would do anything ..7 months ago I had my right hip done with no pain for the first time in a very long time ..4 weeks ago I had my left hip done one of the pins was broken and a small piece is still in there and my left leg is a inch longer then the right .I think this is why im still having hip and back pain .the knee pain is getting better ....I wish you well.and good luck
  • Snowgirl79
    Snowgirl79 sugarman

    Posted

    I'm sorry to hear about your problems...I hope that things get better for..
  • bini31328
    bini31328 sugarman

    Posted

    Youve had a really dreadful time , i do hope you find a resoluon to your problems xx
  • susyp
    susyp sugarman

    Posted

    This must be awful to live with. Makes me very grateful that my only concern is stiffness. I hope you get it sorted. Best wishes.

    Sue x

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