I really need advice

Posted , 6 users are following.

I have found out last Thursday I have a 5.6cm cyst on right ovary after getting pain in pelvic area bloating and going off food and feeling nauseous. Doctor says I need to go for a ca125 blood test and I'm so scared. What does it mean? I'm litcerlly really scared. I have health anxiety as it is and this is making me so bad. I don't no what to expect I don't want to go through any pain and I don't want it to be cancer. I need reassurance so badly sad

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  • Posted

    Hi,

    I'm in the same situation as you only I have a 4cm complex ovarian cyst and ive had the Ca125 test on Thursday, my head is spinning and ive got an appointment now with a gynecologist in 3 weeks . Petrified of the results . I am in complete panic mode as I suffer from panic attacks and anxiety too xxx

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    • Posted

      Oh my god I no it's awful I suffer from panic attacks also and bad anxiety and it's driving me crazy. What did they say after u had the blood test? Have u had results back?

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    • Posted

      No hun, they said 3 to 5 days but I have a lot of fibroids also so from what I've been reading it can be an inconclusive test . My fear is hospitals and anything medical so this has sent me into complete meltdown. I'm 43, 2 kids, my symptoms were heavy periods and very irregular also pain on my left side. I've been telling docs for about a year but because I suffer with anxiety I don't think they took me seriously. Anyway long take cut short, saw a different doc and she recommended an ultrasound ad she suspected fibroids, on day of scan they told me I had fibroids but needed a further look so had transvaginal scan the following week. Doctor phoned me Wednesday and told me andand had blood test Thursday. So my weekend had been horrendous and I'm petrified of the phone going but on the cother hand I need to know. You need to go for the test, that's one obstacle out of the way, its like hurdles , I've Jus got to get over the fear of going into a hospital never mind an operation.

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    • Posted

      Blimey I no what u mean I'm 35 with 3 kids I have my blood test Thursday this week and have been referred to gynocloagist aswell. How do they drain fluid? Is it internal I heard it is with a camera? It's all so stressful I no how u feel completely Coz I hate hospitals to. I suppose it's for the best tho isn't it for our own good but I just can't stand it!

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    • Posted

      I can't stand it either and it's a process of waiting. Feel like I've been in complete panic since Wednesday x I think they'll have to completely sedate me before and after as i cannot even walk in a hospital without having a panic attack ???????? but as illogical as it sounds I know I have to go with what they say and I feel so out of control.

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  • Posted

    Hi girls,

    I just wanted to say DO NOT PANIC, that blood test is just an indicator and doesn't confirm anything. Drs say it's fairly useless unless it's to monitor cancer treatment.

    Now if the result come back high it again does not mean it's cancer, cysts, endometriosis, taking the test near your period can all affect the results. I did lots of reading before mine and some people with extrordinarily high results still did not have cancer.

    Please do not worry yourselves about this, I know it's scary, I've just been through being told I have a cyst and having the blood test and having an operation to remove my cyst.

    Most pre menopausal ovarian cysts are not cancer, when women go through the menopause they have a higher chance of ovarian cysts becoming cancerous but even then the risk is low.

    Honestly do not freak out, even if your test comes back higher than what he Drs would like, they will just need to do further investigations for cysts, fibroids etc, it does not mean cancer.

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    • Posted

      Thankyou so much for your reply xxxx I really am in meltdown at the minute but I know i have to go with the process. I'm overwhelmed by the thought of cancer and note overwhelmed at the thought of any procedure in rectifying the situation. So pleased you've commented as you've put my mind at rest a little xxx

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    • Posted

      I had a very large chocolate cyst at over 9.5cm on ultrasound but she said it was bigger when she removed it, I had laparoscopic surgery, she also removed a cyst from the other ovary and I think unadhered my bowel from my uterus in 1 area, I also had a Hysteroscopy at the same time, I had my op on Thursday and came out on Friday. I am already moving around, worked today (sitting down office work at home) and aside from bending and lifting am fairly capable. It hurts to laugh hard or sneeze and the area is bruised and sore but it's not as bad as I thought things would be. The gas they use to inflate the area can be painful but again it's a couple of days and it goes.

      I was very scared and worried about going for surgery, Drs make me nervous and so does anaesthesia and surgical procedures full stop but I can honestly say it wasn't too bad. They give you a sedative before the anaesthesia to calm you down and then the next thing you know you are waking up feeling rather dopey. The first night comes and goes in a blur and then there is a couple of days of just trying to chill out.

      If you do need to go for the surgery then ask a partner or friend to come and sit with you until it's time to go down, this keeps your mind busy, my partner had to go and get our son from school so I had a few hours on my own which was the hardest/boring bit. They will keep you in until you can pass urine which I couldn't so had to stay overnight plus my op didn't happen till about 17.30.

      It's not a nice thing to have to go through but it honestly isn't terrible. You will be fine and if your really frightened then speak to the dr about getting sedation earlier or making sure your first in the list for the operation, that way once you have woken up in the morning it's time to go to the hospital and you haven't got much time to think about things. Also then you don't have to starve all day!!

      Honestly don't even think about the ca125 blood test, it really isn't an accurate test for cancer and more than likely you don't have ovarian cancer as it's very rare in pre menopausal women.

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  • Posted

    Please do not panic, the CA125 is a routine blood test for ovarian cysts, and  ovarian cysts and fibroids are really common especially in pre menopausal women and even in post memopausal women too. and most of the time they are usually benign, I have 3 cysts, 2 on one side and one on the other and a fibroid too!! and I am post menopausal and  I have had the CA125 blood test which was a low score and after an ultrasound and an MRI they have told me mine are all harmless and I am now on a watch and wait to see if they go on there own or if they get bigger then i will have them taken out, but even the operation is quite simple its usually a laparoscopy. Please try not to stress because honestly cysts are so common and the majority of the time they are quite harmless and go on their own.  Hope this helps
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    • Posted

      A laparoscopy is 3-4 small incisions on your stomach and they work inside using instruments. It is really not as bad as it sounds and is much quicker recovery than doing 1 long incision like a c section. It's keyhole surgery for your belly! I'm 4 days post op and do not need to take pain meds anymore, it's still sore and bruised but I'm up and about and doing well, I thought I'd need much longer to be lying on the sofa but each day gets a bit better.

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    • Posted

      I went in last Thursday, was out Friday but I had my op very late and you have to pass urine before you go which I couldn't until about 3am. Yes it's a general anesthetic, your completely asleep throughout the whole procedure.

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  • Posted

    Numb,

    Don't panic. CA 125 is just one blood test that is a diagnostic tool. I had multiple, very large cysts, child's soccer ball size! I had to ask my Dr. to order the test. Results came back very high. My Dr. told me I had cancer and to get my affairs in order. Wrong, TG.

    After much anguish waiting to meet with the surgeon he looked at all my tests and said with 98% confidence, that I did not have cancer. Being a gynecological/oncologist surgeon, the hospital department head I believed him. I still worried but after surgery he confirmed. Yay! Turned out my cysts and accompanying symptoms were the result of previously undiagnosed endometriosis. It was significant and also caused the elevated CA125 results. I have since learned to deal with facts as they are presented. I work hard not to worry about the unknown. I research and ask lots of questions, yes I'm anal. But it helps me trust those I chose to treat me and partner with them instead if trying to blindly trust. That just feeds my fear.

    I used to be a hypochondriac but I now research and seek examination instead of worry, fret and let things fester because of unfounded fear.

    You've taken the right steps, so is your Dr. Investigate, diagnose and treat. Currently he/she is in investigate mode. Ask all your questions at your next visit. Write them down, most Drs. like an organized patient. It is stressful but try not to fear the worst. Deal with one step at a time. Your Dr. sounds thorough and is your health partner. Cysts can be caused by many things. Hormones, follicles that didn't release an egg, endometriosis.... I assume you saw your Dr. promptly, so try to keep things in perspective. One step at a time, you are strong and can deal with the outcome, one step at a time. Watch your favorite funny movie, go to a comedy show. Keep your mind happy, to stay out of the tunnel.

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