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I really need help!

Posted , 11 users are following.

jon54193
jon54193

Dear all,

6 months ago I was diagnosed with EARLY chronic Pancreatitis. The last few weeks I've been having the following complaints:

- incredible headaches

- extreme brain fog - I can barely wake up/

- cannot feel my legs, they are VERY heavy.

- pain in wrists

- neck pain

What the hell is going on? I'm worried I may not wake up...! Please help, I really would appreciate it. Thanking you all in advance.

 

1 like, 54 replies

54 Replies

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  • jon54193
    jon54193

    Posted

    It's me again.

    I'm getting major stabbing pain let side that just won't go away. Anyway. I have a question....If all scans come back negative and I'm told that my pancreas is not the problem - I was told I have IBS and fybromalgia. BUT if this is the pancreas which is the problem, which I believe it is, why does the pancreas create pain and not show up as damaged?? thanks everyone!

     

    • emmab
      emmab jon54193

      Posted

      Hi John,

      It is a very difficult disease to diagnose. I think you should go back to your Gp have you had Endoscopy that does tell a lot of things gallbladder ect I believe.

      Best wishes

      Emma

    • nataliefranc
      nataliefranc emmab

      Posted

      Hi Emma I think I found you on Facebook I sent you a message. Can you please check your inbox. I have lots I'd like to ask you about this condition!
    • jon54193
      jon54193 emmab

      Posted

      Hi Emma,

      Through endoscopy 15 months ago they said "suspected chronic pancreatits" They told me the pancreas didn't look correct, no damage, no calcification, nothing.... I went for a 2nd opinion and they said it was nonsense. Had MRI, came back negative. Had PET/CT of full body also negative. Stool test negative...but I still have the pain in that area....!

      I feel lost....

    • eric28927
      eric28927 jon54193

      Posted

      Hi Jon,

      I too was suspected of early chronic pancreatitis/ resolving acute injury. My endoscopic ultrasound showed hyperechoic strands on the body of my pancreas, meaning the tissue is dense.

      Was wondering how you are feeling at this point? My understanding is that our condition is reverisble, since no major damage was shown on EUS. Hopefully you have been taking precautions: low fat diet, small meals, no drinking/smoking etc.

      I have been following my healthy regimen for 3 months now, and I feel a little better everyday, though not completely healed. The goal is to not be classified as chronic!

      Pain means inflammation! We may not have chronic inflammation yet so be disciplined and believe you can heal! The mind is strong and so is the human body!

      Best wishes,

      Eric

       

  • jon54193
    jon54193

    Posted

    By having my blood sample sent abroad I have been diagnosed with having Lyme disease. Now I need to figure if this has caused all my problems for teh past 2 years or if I have Lyme + a pancreatic problem! Hope everyone is ok.
    • leigh74005
      leigh74005 jon54193

      Posted

      Wow. Why couldn't you have the bloods tested I'm uk for lymes?

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