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I STARTED HAVING B12 INJECTIONS LAST YEAR AFTER GOING TO...

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Guest
Guest

I STARTED HAVING B12 INJECTIONS LAST YEAR AFTER GOING TO MY GP ABOUT CONSTANTLY FEELING LIGHTHEADED TIRED AND FEELING THAT MY LEGS WEREN`T GOING WITH MY BODY. I KEPT FEELING LIKE I WAS GOING TO PASS OUT ALL THE TIME. I HAD A BLOOD TEST WHICH SHOWED I WAS B12 AND FOLATE DEFFICIANT.

I HAVE JABS EVERY 8 WEEKS ALTHOUGH I FEEL I NEED THEM EARLY AS MY SYMPTOMS GET WORSE WHEN MY B12 DROPS.

I AM CURRENTLY AWAITING TESTS RESULTS FOR COELIAC DISEASE WHICH COULD BE THE CAUSE OF MY PROBLEMS.

TO BE QUITE HONEST I AM SICK OF LIVING IN A HEAD RUSH WORLD AND THE DAMAGE HAS BEEN DONE TO MY NERVES.

I DO NOT THINK ANYONE IS SYMPATHETIC TO HOW SOMEONE WITH THIS ILLNESS FEELS.

I AM ONLY 35 YEARS OLD AND IT DOES AFFECT YOUR LIFE.

[i:08c7bb7b07]This message was automatically imported from the original Patient Experience[/i:08c7bb7b07]

0 likes, 5 replies

5 Replies

  • Guest
    Guest

    Posted

    I was diagnosed with B12 and Folate deficiency and have been told to have injections every 12 weeks. But about the 8th week I start to feel ill. My legs don't feel as if they belong to me. I get confused and so very tired that I feel completely exhausted. I get confused and irritable. I have pains in my legs that makes them feel so weak, and the bruises appear the nearer it gets to my needing an injection again.

    I am trying to work full time, and it seems hopeless some days I feel that I just can't go on.

    Does anyone else feel like me, or should I just get on with it, although its very hard sometimes.

    [i:50a0fa4040]This message was automatically imported from the original Patient Experience[/i:50a0fa4040]

  • Guest
    Guest

    Posted

    You hang in there girl.Get a vial of b12 & give it to yourself once a month in upper arm.I use short diabetic needles & slide them in at an angle.About 2 days later,I feel better.I contracted PA from complications w/ Lyme's disease(tick)& a brown recluse spider bite.It left me w/neurological problems before they could diagnose it.The b12 helps me combat the chronic fatigue,nightly leg spasms,thinking problems,etc.I can't remember to take it,until I just can't go.I need to take it weekly,but don't.Usuallyabout every 3wks.A big vial lasts me a yr.(about $14-$15 in Ga.)I'm 46 yrs.old & can definitely say b12 helps & it won't hurt you.It's just the thought of the shots.Take care dianne & best of luck!:wink:

    [i:8ece3391d7]This message was automatically imported from the original Patient Experience[/i:8ece3391d7]

  • nadia1973
    nadia1973

    Posted

    I have Coeliac, I was diagnosed 12 weeks ago. I have to have B12 injections, 5 in the first 2 weeks and then every 12 weeks.

    You really don't realise how many things have gluten in, it really is a trial to do the weekly food shopping when there is hardly anything I can eat.

    My eldest daughter has also been diagnosed but she is waiting to see the specialist at the hopsital.

    We are not alone, there are coeliac support groups in most cities and if there isn't one it might be an idea to start on. A lot of the gluten-free food companies will help by supplying samples for people to try.

    Don't give up, it does take time, but it is all worth it in the end!! :P

  • catiche
    catiche

    Posted

    .Hello

    After years of visits to the GP with weird things dizzy numbness and a barrow of other illnesses i was found to have pernicious anima. B12 injections every 3 months DO NOT WORK. Every day your body needs 2.4mg of B12. if it cant come from your food anymore it has to be injected or your marrow bone will make enlarged red blood cells that cant carry oxygen to your body. That is why you feel light headed and numbness as all your body needs oxygen restricted oxygen and the body starts to die in stages including your brain. so if you cant think striate and your vision is slow you need more oxygen to the tissues. Your breathless because the lung tissue is not getting enough oxygen to work. 1000mg injection is not stores in the body it leaves in wee within 48 hours. You only use 2.4mg that days worth. Then your body has none again. I am trying to get the health authorities to produce subcutaneous injections for daily and pain free injections. You can get them from a private GP. I have changed GP and I now have weekly Hydroxocobalamin injections and I have no illnesses for the first time in 15 years.

    good luck with the FORGOTTEN ILLNESS the health service have lost touch of.

    • caroline92252
      caroline92252 catiche

      Posted

      I too have all symptoms above I had loading course of jabs never did much except take the pains away for a couple of weeks I'm due next one in December I'm going to docs this week I want a read out of all my bloods my iron was 5 or 6 now 10 I don't know my b12 levels just told there back up I also have low vit d and no in Petrie menopause when I get my levels I'm going to see whAt I can take or do to make me feel normal I have joined a closed group on face book pernisous anima there great  
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