I started taking Lansoprazole at the age of 27 and have ...

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I started taking Lansoprazole at the age of 27 and have been using it daily for five years. I used to get these terrible throbbing pains in my upper stomach, which would spread upwards into my food pipe. The pain would get worse and worse, and go right through to my back. When it first happened I thought I was having a heart attack! The Lansoprazole is very effective. I started on 30mg for about two years, then went down to 15mg for about 6-months, but then the pains came back, at times so badly that I had to walk out of work meetings and go home as it was impossible for me sit there and disguide the pain I was in. I'm now back up to 30mg daily. My doctor says the government recommends 15mg but that doesn't work for everyone. Apparently the government want to make it only avaialble over the counter which worries me, as it costs about £10 for 6 tablets, but at the moment I get a three month prescription for about £7. I have had a gastroscopy (tube down my throat, into my stomach) and all they saw was a little inflammation, I also had treatment for H. Pylori bacteria but that didn't do anything, I suspect because I wasn't infected in the first place. The doctor was at a loss and admitted he was treating my by a process of elimination. It is frustrating to live with this without a clear diagnosis and worries me about long term effects on my health, but most of the time the medication does its job and life goes on as normal. Last night I had a rare, but prolonged attack that kept me awake for two hours, and I tried swallowing air and burping it back out - it seemed to work bizarrely enough! If anyone wants to get in touch re. this please do as I could do with sharing this sometimes with other sufferers instead of feeling like a freak with an exotic disease at the doctors! Thanks.

[i:e879756bfd]This message was automatically imported from the original Patient Experience[/i:e879756bfd]

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  • Posted

    Hi - I've posted before but not been on here for a few months. I came off the Lanzoprazole (I had Omeprazole before that) and like many had really severe symptoms for about 2 months before they started to ease. On the advice of a colleague I tried cider apple vinegar which does seem to relieve the symptoms. However, for quite some time I've been looking for a trigger and quite by chance after reading a comment from a friend about someone else's post on Facebook I tried cutting out artificial sweeteners, especially aspartame. I realised I was having this daily as I used Half Spoon sugar on my cereal thinking it was a healthy option. Within one month my symptoms are almost negligible - I get occasional indigestion but I can manage it easily with Gaviscon. While this won't be a fix for everyone I think it's worth checking what you're eating and drinking - there are an incredible amount of things out there with artificial sweetener in them. I feel loads better, and if I accidentally consume something with sweetener in it I know about it quite quickly as the pain starts within the hour & gets progressively worse. So if you have got symptoms and are on these drugs long-term then I would suggest coming off them and trying to find your trigger(s). But the first few months will be hell - really bad. I have previously stuck totally to a diet of white fish, green vegetable and boiled rice or potatoes - really bland and boring but it does cut out virtually everything that can cause these problems. I lost a lot of weight and got rid of the problems, but at that time I didn't think to look for the trigger as I reintroduced other foods. Anyway - good luck all, don't give up & here's wishing you good health without these drugs...
  • Posted

    Hi, like most of the other posts, I have similar problems, trapped wind, stomach pains, constipation, feeling like my throat's being stretched. I'm on 30mg Lansoprazole twice a day for Hiatus Hernia, Acid Reflux and Barret's Oesophagus, have been on this for last six months but have been looking for ways to reduce the dosage or come off altogether. I came across a book called Hiatal Hernia Syndrome by an American Chiropractor, Theodore A Baroody, who writes a lot of the pain and discomfort comes from a trapped or pinched Vaso vagal nerve. He gives some exercises that can help control the pain and discomfort. They are quite similar to some yoga exercise, one being a modified cobra, so have just started gently trying them with some relief. Have also tried Chinese Health Qigong exercises, specifically the abdominal breathing exercises, which also helps me, Ken Cohen's Healthy Breathing. Not everybody's cup of tea, but when needs must. Hope this is of help.
  • Posted

    Hello everybody, I'm so pleased to find all of this useful info....I have suffered with stomach pain for years now but it recently became worse. I visited the doctors again and demanded a referral to endoscopy. ..had the usual tests and it came back with gastritis although I was convinced I had h pylori. The doctor gave me the h pylori anti biotics as well as lanzaprazole. It was like a miracle...I had no pain for 2 whole weeks and the acid taste in my mouth vanished. After the 7 days I went down to 1 30mg lanzaprazole so I believed I must have had h pylori. After the 2 wks the pain returned so I went back up to 2 30mg lanzoprazole (I started taking 1 after the 7 days). The pain has dramatically reduced but every now and again it returns, usually during the night...which never happened before? I was devastated as I thought that was it problem solved

    I have an ultrasound next week so I'm hoping that reveals something that may explain it. Does anybody else get awful tastes in the mouth? This also dissapeared at first. Any info would be appreciated. Poor us :-(

  • Posted

    Forgot to say....I seem to be getting terrible spots on my face since taking the lanzoprazole....anybody else experience this? X
  • Posted

    Hi

    These symptons sounds exactly like my partner suffers, he is on prozac and another drug for schzophenia, wwould this lansoprazole be suitable?

  • Posted

    im feed up myself ive had it for 3 years i am on 30 grams of lansoorozole...i think its pointless

    i have silent reflux boy oh boy if im not up 2 times im up 3 times in the night my mouth so dry and sticky

    it bad i have to swill my mouth out i have my bed head 10in or more high..i dont eat after 8..im on tablets

    ive seen a e.n.t what more can i do,,anyone have any new iders if so pass them on to me..im seeing the doctor on the 25 im not happy? i did hear though there is a new op.. that they put small magnets at the end of your escopagas so it open when eating and then shuts..i read about it in some mag..

  • Posted

    Hi

    I hope you got it sorted out. 

    What you described sounds like what I had (H. pylori) exactly the same symptoms as you.   I took two courses of antibiotics (this was 11 years ago) and it cured the symptoms (thank god because it was aweful).  The doctor should send away for tests (I had blood tests done) to see if you have the bacteria firstly so if you haven't ..ask for one.  Then you should get two types of antibiotics and a proton pump inhibitator (my course was for a week).  That should cure it.  but if it doesnt (or in your case didn't) sometimes you have to try a different type of antibiotic.  Check out this website (its amazing and helped me alot)

    http://www.helico.com

    it also has a forum.

    Regards

    Natalie

  • Posted

    yest you was right natalie it was that bug? but im still having a camara down on the 10th of july because the doctor booked it in.but i feel a lot better but my mouth is dry at night and a little sticky though... so i might as well but im not looking forward it it lol..i did find after i just finshed the tablets for that bug..i was getting cramps for 3 days in my gut..but it seem to have gone..but thanks again for you messages thanks
  • Posted

    Thanks to everyone who's posted.  It's really helpful for researching my condition.  I don't seem to quite fit as I have never suffered reflux and don't get pain - just food getting stuck and feeling like I'm going to choke - have been to A&E 3 times now over last few years.

    Recently saw a new doctor who thinks it might be eosinophilic oesophagitis and awaiting biopsy.  This is an allergic reaction to something.  Only thing I've found through trawling sites like this is possibly sulphites and common link is wine and cereal bars - both of which contain sulphites.  I've also found that it is in the top 12 allergens - hopefully will have proper tests to find out.

    Thanks to those who posted on alternative treatments.  I was surprised that there was not really any mention of allergens and it may be something for people to think about.  I'm a great believer in 'we are what we eat'.  

    Has anyone else experienced anything similar please?  BTW, I was once given lanzaprasole and immediately developed a terrible allergic reaction - red hives on hands and feet and huge blisters hanging down from the roof of my mouth.  Stopped it immediately of course. In the blurb it says this reaction happens 1 in 10,000 cases.  

  • Posted

    Hello! I have been researching for a good few years now as to what I might have, but I feel like I am constantly in a state of confused limbo. I have been reffered to have an endoscopy but the wait list is 8months. I have been taking lanzoprazole for 2 and a half years now and mostly with the medication things are ok. But I have a lot of stomach problems, pains, constipation and scary painful spasms in my abdomen and sometimes in my neck, I also get wheezy when I eat sometimes and get a bad cough.  Its terrifying, I have been going to the doctors with acid reflux problems for years now and I have only just been reffered for an endoscopy and I have been asking for one for ages. It really worries me aswell the long term effect and what might be happening to my body without a clear diagnoses. Also I find things that I can control help my state of mind and make me feel like I am doing everything I can possibly do for myself I am doing, i.e. eating healthy food and drinking minimal alcohol (which is pretty depressing for a 26 year old woman). I honestly feel your pain which is what moved me to reply and say I know the pain and concern you are living through and I hope it gets easier and they sort it out for you soon. Jaz 
  • Posted

    i started lanzsop around 14 years ago after suffering hb for from 16 to 23 i had camera down and diag stomach ulcers they put me on them and packed me off with no advice . they do work but the side affects are terrible. itchy headache back pain blurry vision dry mouth and more. so i stopped taking them last year i do suffer bad with heart burn but i just drink plenty of water and it makes it bearable just .but since doing more investigating i have just learnd about siberien pine nut oil has any 1 tryed this as i am lead to belive its very good kills h.plyori and helps heal ulcers and relives reflux
  • Posted

    Hi everyone!  Im new to this and its so interesting and im glad i've found this site.  I've had heartburn since my early 20's im 34 now - in 2010 I was diganozed with health anxiety it was bad but not that bad to be on any anti depression medz or anything like that - but I really think that from me having heartburn it made me anxsious smile I felt like sh!t almost every single day. I visited the doctor almost once a week and was getting really anoyed and frustrated I was going in for all kinds of pains but was always told its all from anxiety but I never mentioned heartburn I did mention chest pains so I think I had 5 ECG's - had numerous tests chest xrays all the blood test you can think of - even started seeing a therapist.  Last year I visited the doctor again for chest pain and told them about having servere heartburn again they said its from anxiety but this time they gave me these pills LANZ they were awesome no heartburn or indigestion I was loving these pills I felt good I had 3 month supply 30mg and I started to feel abit better changed my diet excercised alot more then couple weeks after taking them I started to feel alot of pain sore left arm alot of muscle twitching sore legs joints back and I still have these pains now,  so now I go back to thinking oh shux these are just anxiety symptoms now then I think hhhmm I wonder what side effects these tablets have so then I start searching for answers & now im confused I dont know if I have anxiety or if these tablets are making anxious or what!  I have now started taking these every 2nd or 3rd day.  I have tried to stop taking them for a week but heartburn keeps coming back.  I ran out of my 3 month supply and got another lot,  I asked the doctor how long should I be taking these?  He said just try one more course then if they're not working then i'd need to go for a endoscopy.   

    So anoying!  

  • Posted

    Hi ive just come across this after many year , well i got put on 30mg lansoprazole about 10 years ago , im now 35 and my doctor has decided to reduce me to 15 mg , i have been alternating 30 and 15 for a week now and in the early hours of the morning im waking up with bad heart burn , reading about all the side effects im thinking i could have had years but never thought about it . When i was first diagnoised i was sent to see a specialist because i was getting a feeling of a lump in the back of my throat he looking into the back of my throat and said its excessive acid and put me on the tablets , now over the years ihave had many headaches , body aches and cant remember the last time i went to the toilet and it was firm , ive never thought that it could be anything to do with the tablets since ive been on them that ling its just like a normal day . What would people suggest i do now with the bad heartburn in the early mornings stick with the plan to reduce to 15 mg or is there something else to take , ive read lots of replys but theres lots and lots . Many thanks
  • Posted

    Hello, my name is Tony. I woke up a few weeks ago with the same symptoms. It was a tight pinching pain right below my rib on the right side. It felt like it was inside closer to my back. Whatever is inflamed must be the reason for back pain. During a pain attack I would walk around and it made me sick. I blamed it on dairy due to drinking milk both days but then pain kept happening even though i wasnt having any dairy. I then thought of acid reflux. So I purchased 14 day dosage of lansoprazole. Since taking this I have not experienced any pain. I have to agree about the pain. Its not easy dealing with the pain. Hot showers sometimes helps but unfortunately the only thing that made pain go away was to become sick. so luckily now this medicine is working. Keep me posted. I think we deal with same issue.
    • Posted

      You should have the camera down to check out your stomach .I have ulcers 22 years I have suffered it's not nice at all get checked out

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