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Does anyone else feel this way?
I know it sounds really strange. If I concentrate on how I am physically, I can see that I'm ill. This is hard to put into words so maybe I am just the only one? However, When I'm told to rest and be kind to myself because I have this illness part of my emotions reject that I'm ill.
Maybe it's a denial thing cos no-one likes to think they have been ill for so long. Other people complain when they have felt ill for 2 weeks whilst we get it for years. My hubby has said that his knees have hurt going up the stairs for the last 2 days (I've had that for years) and frequently say I wish I lived in a bungalow.
Is it a denial thing cos I don't know if / when it's ever going to go away? If I'm not ill then I don't have to worry about never getting rid of it?
It's maybe also cos I don't look ill (unless I'm using my sticks or mobility scooter). I can even get away with wearing a magnetic back support so I can stand for a while without the supports if I'm not too bad.
Anyone else feel emotionally like they are not ill?
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I think the CBT emphasis doesn't help. All this change how you feel by changing how you think tripe. I've got all the motivation in the world. I'm NOT depressed, I'm wading through toffee everyday until bedtime, when I can collapse and I feel like my body is actually going to break into pieces. It hurts to do normal everyday things and people tell you to deal with it, it's normal.
I'm sure we'd be more willing to accept help and in turn get onto recovery quicker if more people recognised there's something not right, and it can be made better given time.
But no, certainly not alone.
This condition is difficult for people to understand and accept.Could you have a chat with your daughter and explain how the condition makes you feel physically and mentally?
On the positive thinking side of things, have you looked at the Emotional Freedom Technique (EFT)?
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