i suffer from miners disease and tinitus
Posted , 5 users are following.
hi can anyone help at all iv had md and tintus for 2years now iv haven't had a an attack for 2 months now but I still feel hevy headed all the time .has anyone had surgery if yes did it work and stop u from having the attacks please let me no thanks I take betahistine tablets for my md my right ear is buzzing no stot from the moment I wake up to the moment I go to sleep is ther any form of relieve thanks sorry about my spelling
0 likes, 7 replies
maria77273 jason13031973
Posted
Hi Jason two months is good to be attack free. I also have a terrible time of tinnitus most of the day. I've had MD now for over 15 mths. My tinnitus is due to severe hearing loss from the MD episodes. Always ear feeling full and head fog. It's terrible feeling like this. I'm into the Betahistine straight away in the morning and have had to up the dosage when needed. I'm on 16x3 a day but take more if needed. We all understand what you are going through. Have been to ENT specialist for over 15 mths now and same thing. Not much you can do for Tinnitus. Good luck.
jason13031973 maria77273
Posted
maria77273 jason13031973
Posted
Hi Jason. I've mainly had my support through groups in line. There is also a group on line called Tinnitus Hub which I find very helpful. Everyone has a different experience with both MD and Tinnitus. If you want person to person that's great too but you will need to search Google if they have a support group where you live. They have on line ones in Australia but found it hard to find ones personally. Let us know how you go.
jason13031973 maria77273
Posted
Willow4 jason13031973
Posted
Back in 2013 I had a severe long episode. I was on medication, strict sodium diet, tried the steroid injections in the ear and still would not let up. I opted to do the Endolophic Sac Decompression and it went well. I was symptom free for almost 4 year. Then I had a severe attack again and my Dr suggested to revise. The revision has been a nightmare. So surgery I would do as last resort. Have you tried the steroid injections? Are you on Valium to help ease the attacks? Make sure you watch your sodium, most do 1500mg max per day. Unfortunately I have not found anything that stops my tinnitus, very annoying. Hope everything works out for you. Good luck to you.!!
bill53089 Willow4
Posted
I also had the surgery about 4 years ago. No vertigo since then. Iam beginning to feel not "right" again. No dizziness or vertigo, just feel lousy at times and my back of my head feels full. Hard to rest or lay down flat on it. Just got completely retested at Michigan Ear Institute by the same EMT that did the surgery and suggested another decompression. What went wrong the second time? I was greatful that he helped me the first time, but I am scared to continue this way.
Willow4 bill53089
Posted
I also a patient there.
I went to my yearly appointment with my ENT in July and had a good check up. Went through a very stressful incidence and in August I could feel it coming on. I was in a severe flare and my Dr suggested the revision and I didn’t have any hesitation doing it because the first one went so good.
The revision went well, except that he nicked my dura causing a CSF leak. Which is a risk. The packing he packed it with my body rejected and it caused mastoiditis. I believe if he had packed it with belly fat which is usually what they do. I would not have had any issues afterwards. Hope that helps.