I think i have dysautonomia

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Im 19 and I have been back and forth to the drs witch tachycardia and hypertension for the past 4 years , i was sent to a cardiologist who wasnt sure what it was , then i read about dysautonomia and some of the other symptoms ive been having match up. I dont want to suggest it and the drs to think im being histericle bult equally it explains alot

Any advice appreciated

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8 Replies

  • Posted

    Hi,

    I have been diagnosed with two types of dysautonomia, and that's why I have anxiety. There are tens of different types of dysautonomia, which type do you think you have?

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  • Posted

    Thanks for getting back to me , im not sure because i appear to have lots off different symptoms that i first i would have never put together ,

    I have blackouts because of my tach and hypertension, ibs constipation, excessive sweating, excersise intolerance, the shakes , freezing cold fingers and toes, i cant sleep , i get migraines and i suffer abdominal migraines

    Any ideas?:L

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  • Posted

    I had lots of symptoms that were hard to diagnose too. I have Hyperadrenergic POTS and MCAD, neither of which my GP had heard of, which made it so much harder!

    It does fit with some types of dysautonomia, but it also fits with anxiety. You could see if your GP will refer you to a specialist if you tell them about the specific symptoms that are causing you concern?

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  • Posted

    Im also constantly tired and thirsty, im glad its not just me .

    My GP has ruled out anxiety i was under a consultant for my tach and hypertension which were unexplained he then discharged me but the symptoms increased then i read a post about dysautonomia , but i saw it after i mentioned it to the GP ive got an app to see cardiologist 30th april , wasnt sure whether to mention it to him or not , how did yours come about?

    Sorry for all the questions

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  • Posted

    I've had mild general symptoms of dysautonomia since I was 11, and have been passing out frequently since then too. Last year the symptoms got worse and I was sent to a&e by my doctor with a heart rate of 172, blood pressure of 201/114, my feet, bottom of my legs and my hands were completely blue, with a faint pulse and I was drifting in and out of consciousness. I had lots of tests and had a tilt table test to confirm pots. It's unfortunately very debilitating and sometimes I'm bed bound with it. I'm not sure that a cardiologist specialises in dysautonomia too, it's an auto immune thing, so you'd need an immunologist.

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  • Posted

    That sounds famililiar iid been in and out of hospital since i was about 10 as they wernt sure, ive had hr 's of 190-230before and bp of 180/100 so i can empathise entirely! Glad you finally got an answer even if it is debilitating. Hes ruled out the common causes but i hadnt mentioned the other symptoms as i felt they wernt relevent to my heart , not sure whether i should mention i think its dysautonomia or not through feer he wont belive what im saying
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  • Posted

    Yes, it took me a while to mention other symptoms as I didn't think they were related too. Especially the GI stuff as I've already been diagnosed as a coeliac so I thought it was that.

    You could just say that you've looked into it, and some symptoms you previously thought were unrelated, you now think might be linked.

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  • Posted

    Thats the same as me i thought no way are they related ,

    Thats a good idea in the past id been passed off with oh its anxiety then it went on and that was ruled out . Ive often been told that im young and therefore cant possibly be affected by hypertension thats the hard thing . I just want answers its making my life hard.

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