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I think I have fibromyalgia, can I please have some advice as I am desperate.

Posted , 7 users are following.

paula14602
paula14602

Hello, my name is Paula and I am 26 years old. I have been suffering from chronic pain since the age of 18. When it started it felt like more muscle pain in the neck however as the years have gone by it has spread all over my neck and upper back. In the last few years I have started to get the same pain in my jaw and fingers. I am constantly tired and drained and the pain makes me physically sick. I also have severe crunching in my bones when I move. 

I have been to physiotherapists, chiropractors and I have also been seen by a rhematologist who said I was fine and it may just be hyper mobility. I have been told I have slight scoliosis however I believe there is more to it.

I have had an mri scan which showed wear and tear of the back and I had basic blood tests done which were normal but showed my vitamin d was a little low. I go to the doctors once a month for this and I get no help and it is affecting my mental state as I feel so unwell everyday. 

i have also been prescribed many drugs for this and nothing helps my pain at all, they only make me feel even more like a zombie. I believe from what I have read about fibromyalgia that it is possibly what I have but it is so difficult to be taken serious by any doctor.

Some advice and thoughts would be greatly appreciated. Sorry for ranting I am just very fed up now.

Thanks everyone xxx

 

0 likes, 26 replies

26 Replies

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  • delores08034
    delores08034 paula14602

    Posted

    Hi Paula, here are some websites to check out.

    Painresource.com - has information on various things like foods to avoid, a healthy diet, and it has a breakdown of fibromyalgia tender points.

    NFA - FMAWARE.ORG & NFMCPA

    I hope these help with answers..

    • paula14602
      paula14602 delores08034

      Posted

      Thank you very much I will have a look over the weekend. I thik it may be a case of changing my lifestyle quite a bit to try and make it easier for myself. Thanks so much for the comments, it is lovely to have people who understand x
  • teresa_shain
    teresa_shain paula14602

    Posted

    Your best first step is to make an appointment with a rheumatologist so they can help in properly diagnosing you if indeed you have fibro. 
    • sukes
      sukes teresa_shain

      Posted

      Hi Teresa,  Paula has already been seen by a Rheumatologist 

       

  • teresa_shain
    teresa_shain paula14602

    Posted

    I didn't see where she had mentioned she had been to one and her header indicated she thought she had fibromyalgia? Did I miss that? 

    • sukes
      sukes teresa_shain

      Posted

      Hi Teresa,  no worries, we can't read and remember everything.  I was going to advise Paula to ask for a referral to a Rheumatologist then noticed that she had already seen one.  It's in her initial post second paragraph smile

       

  • teresa_shain
    teresa_shain paula14602

    Posted

    You may want to see another rheumatologist and get a second opinion I had three unlit I was satisfied with results. If indeed you have fibromyalgia you should highly consider major diet change to all natural whole foods not packaged or processed items and go organic on produce and fruits. Stay way from caffeine, alcohol, sugars, and dairy and meats that are not grass fed. And usually fibro is created or intensified by high consistent stress levels do yoga and meditation are key
  • paula14602
    paula14602

    Posted

    Today i feel an emotional mess and keep cryibg randomly. Does anyone else struggle some daya with having energy to even get ready and go to the shop? I constantly feel drained and struggle to get ready on my days off work. Does anyone have any advice for this? Xx

  • holly47268
    holly47268 paula14602

    Posted

    Hi paula, i was diagnosed with fibro a few weeks ago im only 23. I had problems for around 3 years leading up to going to doctors. I would be falling asleep by 7-8 clock always fatigue and muscles acheing. I went to see a rheumatologist around 2 year ago and was told i have benign hypermobility syndrome however this is something you have to live with there is no cure just a healthy life style and exercise. However none of what i was advised to do was helping my back pain or tiredness. I got worse rapidly in march this year i woke up one day feeling as though i had physically been in a car accident my body was acheing so bad i had 12 hours sleep and felt like i had none i couldnt move. Eventually after 4 days of waking up the same i went back to doctors which sent me back to rheumatology. This time around a lot of symptoms had changed. I had fallen down the stairs 4 times in 1 month as my knees just give way randomly. My shoulders have started to lock up and click(very loud) around 20 times a day. I get around 10 unexplained bruises per leg constantly recurring once one lot dissapear within one nights sleep there back. I get tired so easy when doing any sort of activity even just ironing or taking my dog out for a walk. Fibro is very demanding and changes your life ive since had to leave my place of work as i cant guarantee i get get there on time depending on how my body is when i wake up. I was also told from my last blood tests around 4 weeks ago i have vit d deficiency and a few weeks before that low folic acid levels all my xrays came back normal. After this my rheumatologist advised she was diagnosing fibro and my gp has prescribed me a form of anti depressant that has been seen to help relieve fibro symptoms.

    Hope this has give you a little of what you were looking for x

    • paula14602
      paula14602 holly47268

      Posted

      Thanks very much for your message. That sounds awful and exactly the same as me. I wake up some days and feel like I have been run over by a car or a huge elephant haha it feels like broken bones all over my body some days. I have been on anti depressant for it but didn't give me any relief at all. I have gave up with the doctors as after going to the doctors for 8 years I can tell they don't take it serious or won't diagnose me so I am going to go down the route of vitamins and hollistic care and hopefully eventually I will get some relief. Thanks very much for replying, just speaking to me is making me feel better xx

  • Kubie
    Kubie paula14602

    Posted

    HI

    How is your thryroid?  The theory around hypothyroidism and fibromyalgia is that there is a study (Pubmed) where rats  were made hypothyroid which happened to have also doubled their lifespan. My endocrinologist confirmed that hypothyroid people do live longer but have other problems...and it kind of explains why im almost 50 with no gray hairs. I got my first gray about 5 months ago. Its no longer there....most people I know and people in my family have gray hair by the time they are mid 30s. 

    So the theory about lifespan...with longer lifespan means that your cells are not turning over as fast..which also means you dont' need to eat much..or smaller portions throughout the day.  So parts of your body's systems moves lower and turns over slower than other systems. I believe that the muscle and joint pain is kind of like when you work out real hard or get banged up in a accident...you sleep one or two nights..and you really feel better and "repaired" after you sleep. Well sleep sucks with Fibro as it is and your body is not repairing so fast..so it may take 3 days of long uninterrupted sleep...just to get a fix.

    I seem to manage it all well without drugs.

    SLEEP: I make NO EXCEPTIONS on the weekend...while my house may not be as neat or clean as it used to....and I let the dishes pile up...my sleeping in on the weekends are a MANDATORY THING.  I also have a job which starts later and ends later 11-7pm PERFECT.  Because the mornings are the worst..and if your sleep sucks..you can make it up with a power nap from 8am-10am..which happens to be the best hours I get for sleep for some reason.  You can makeup for doing chores on the day you feel well. It works out so much better when you do.

    The other thing that helps is PINEAPPLE..its has "bromelain" and enzyme.  Pineapple aka "the Flesh Eating" fruit. It forces your cells to "turnover" and forces your metabolism to generate new cells...you can read about it online.  MUST BE FRESH CUT from the Pineapple. It takes 24-48 hours to feel lighter..like you are not fighting gravity. Less pain.  Also, having a cup of strong coffee... with something to eat alleviates pain..and increases energy feel.

    VITAMIND D- at least 5000m a DAY!!! 

    I also must take Levothyroxine for the TSH Thyroid issue.

    But thats about it for me...as long as you are hypothyroid and have Fibromyalgia...that's the theory..and it seems to apply.

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